Finalist
The Inside Story - Pompe and Fabry Disease
With support from: Havas Life Medicom
Summary of work
As an industry we create a lot of materials for patients without truly engaging them in the process. Sanofi Genzyme sets out to work differently. To be the facilitators of materials written by patients for patients. Taking this approach taught us something that all medical communicators know in our hearts. If we give patients the chance to tell their stories and we help broadcast their stories to others, there is a reality and relevance in their narrative which the rest of us cannot hope to match.
Ultimately, the success, reach and impact of the materials created is down to the patients who were at the centre of the project and their desire to help others in similar situations.
Judges’ comments
The Inside Story was a powerful and commendable initiative and it was great to see the pharmaceutical company working so closely with patients – who were clearly at the centre of this programme.
