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Judges' Special Recognition Award

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by Cambridge Rare Disease Network with support from Havas Life Medicom

Summary of work

RAREfest is the first of its kind; an open to the public rare disease-inspired festival and campaign bringing passionate and inspirational people together to change the rare disease landscape for the better. This heart-warming, informative and action-inspiring campaign connected scientists, technology companies, charities, social enterprises, artists, performers, schools and the public.

The campaign successfully created a community united behind the goal of addressing the mismatch between public perception, knowledge and the reality of rare diseases. That community became the platform for rare disease expertise to be disseminated, connections to be established, and ideas readily exchanged and discussed.

The result was more than 20 new working collaborations with, and between, pharma, biotech, academia and patient groups meaning additional research, events, discovery projects and materials that add up to a significant change for the better.

Judges' comments

RAREfest is a hugely collaborative and creative local initiative with the sole purpose of sharing information and ideas across a broad rare disease community. A great project which showed that individuals working with rare diseases face shared challenges and together they are stronger.


RAREfest - by Cambridge Rare Disease Network with support from Havas Life Medicom


GLAD I Took Part - by King’s College London with support from Four Health

Key dates

Entry deadline 29 August 2019
Extended entry deadline 5 September 2019*
*additional fee applies
Judging day 26 September 2019
Company/Team Interviews 9 October 2019
PMEA Event 27 November 2019