Please login to the form below

Not currently logged in
Email:
Password:

Digital intelligence blog

Pharma insight on digital marketing, social media, mobile apps, online video, websites and interactive healthcare tools

Novartis sponsors rare disease patient community

Backs site for patients affected by pancreatic neuroendocrine tumours (PNET)

Digital_Intelligence_blog_pharma_thumbNovartis has given its support to the first online community specifically for patients affected by a rare form of pancreatic cancer.

The Pancreatic Neuroendocrine Tumor (PNET) Support Community is a peer-to-peer support community for patients and carers from around the world to share information and support.

Created by New Jersey-based agency Inspire, the community's patient group partners include the Carcinoid Cancer Foundation and the Pancreatic Cancer Action Network.

Novartis, whose interest in the area centres around Afinitor (everolimus), will be the site's corporate sponsor.

Inspire's CEO Brian Loew said: "We have seen repeatedly how online patient networks can empower people affected by rare diseases.

"We're grateful for the support of our nonprofit partners, and to Novartis, all of whom understood that PNET patients needed this kind of resource in which they can exchange information with others facing the same serious health challenges."

Group members discuss such topics as practical tips for the newly diagnosed, chemotherapy and targeted therapies, and surgical options, Inspire said.

11th July 2013

From: Healthcare

Share

Tags

COVID-19 Updates and Daily News

Featured jobs

PMHub

Add my company
Health Unlimited

Health Unlimited is a global health consultancy and communications agency built by specialists with unmatched experience, perspective and expertise. For...

Latest intelligence

Patient engagement
Taking a holistic approach to patient care
The importance of recognising each patient as an individual...
The concordance conundrum – the tech divide
“Hello? Can you hear me? I think you are on mute” – how many times have we all heard this over the past five or so months? Not exactly the...
3 ways to increase patient retention rates in clinical trials
Retention rates are falling in clinical trials. Yes, it is a bit disheartening. But there are some straightforward things you can do to turn it around....

Infographics