Please login to the form below

Not currently logged in
Email:
Password:

Digital intelligence blog

Pharma insight on digital marketing, social media, mobile apps, online video, websites and interactive healthcare tools

Actelion partners with PatientsLikeMe on blood cancer research

Will create patient-reported outcomes tool for rare form of non-Hodgkin’s lymphoma
PatientsLikeMe Open Research Exchange ORE

Actelion has formed a research partnership with an online patient community to create a new research tool for a rare form of non-Hodgkin's lymphoma.

The Swiss pharma company and PatientsLikeMe will work with patients to develop new health measures that better reflect patients' experiences living with and managing MF-CTCL., a disfiguring cancer, primarily of the skin.

The most prevalent form of cutaneous T-cell lymphomas (CTCL), mycosis fungoides CTCL accounts for about two per cent of all lymphomas.

Mitchell Nagao, Actelion's senior director - medical head of Valchlor and Zavesca, said: “As changes in technology, culture, and treatment affect how patients live with disease, we want measurement to evolve accordingly.

“Our work with PatientsLikeMe will help ensure we're applying the best principles for patient-centered research and giving tools back to the community so they can evolve them even more.”

Actelion joins the likes of Sanofi, Merck & Co and Boehringer Ingelheim in working with PatientsLikeMe, but will be the first pharma company to use its online Open Research Exchange (ORE) hub.

PatientsLikeMe vice president of innovation Paul Wicks: “We created ORE to help patients and researchers work together to transform care and discovery that truly serve the patient. Now we're past the initial pilot stage, and it's exciting to see members of industry engaging with patients to develop more tools that really measure what matters to patients.”

6th August 2014

From: Research

Share

Tags

Featured jobs

Subscribe to our email news alerts

PMHub

Add my company
Streaming Well

Streaming Well is a healthcare-focused, award-winning video production company which operates in the US and Europe. We create engaging visual...

Latest intelligence

Tactful screening & participant sensitivity
Screening participants can involve asking personal questions that could be perceived as intrusive. Here CMR explores the implications of such lines of questioning....
Precision paediatrics: Treating patients with CAR-T
Dr Stuart Adams specialises in using T-cell therapy to treat paediatric patients at Great Ormond Street Hospital. Here, he explains what it was like to develop and deliver a groundbreaking...
What does it mean to be an agile organisation
We spoke with Philip Atkinson to learn how healthcare and pharmaceutical companies can rapidly respond to changes in the market....

Infographics