Please login to the form below

Not currently logged in
Email:
Password:

Digital intelligence blog

Pharma insight on digital marketing, social media, mobile apps, online video, websites and interactive healthcare tools

Shire launches rare disease website

Hereditary angioedema sitesupports its Me, Not HAE campaign

Shire HAE rare disease awareness website

Shire has launched an awareness website for hereditary angioedema (HAE) as part of its Me, Not HAE campaign.

The site allows patients with HAE to share inspirational stories and messages and online wishes shared between 16 and 30 were added by the company as a leaf to a virtual HAE Wish Tree (see above).

Emmanuel Dulac, head of the rare disease business Unit at Shire, said: “Shire is dedicated to raising awareness of HAE and recognises the importance of sharing inspirational messages and stories as a way to encourage and show our support for those living with this challenging condition.”

A rare and life-threatening genetic condition, HAE affects about 1 in 10,000 to 1 in 50,000 people, with symptoms including unpredictable swelling in various parts of the body including the extremities, face, abdomen and upper airways.

Anthony Castaldo, president of advocacy organisation the International Patient Organization for C1 Inhibitor Deficiencies (HAEi), said: “People living with HAE often feel isolated, so sharing personal stories and messages of hope will help unite the community and strengthen its collective voice.

“This new site not only offers visitors the chance to learn more about HAE, but to also contribute messages of hope for the community in support of HAE day.”

2nd June 2015

From: Marketing

Share

Tags

Featured jobs

Subscribe to our email news alerts

PMHub

Add my company
Health Unlimited

Health Unlimited is a global health consultancy and communications agency built by specialists with unmatched experience, perspective and expertise. For...

Latest intelligence

It’s all about patient outcomes… right?
Lessons from history: a design thinking perspective...
Emma Walmsley 2
30 Women Leaders in UK Healthcare (part 3)
Continuing our special feature on Women Leaders in UK Healthcare...
Louise Houson
30 Women Leaders in UK Healthcare
The enormous challenges facing UK healthcare mean it needs great leaders. PME’s Group Editor Andrew McConaghie introduces 30 outstanding innovators and trailblazers helping to shape the future...

Infographics