Please login to the form below

Not currently logged in
Email:
Password:

Digital intelligence blog

Pharma insight on digital marketing, social media, mobile apps, online video, websites and interactive healthcare tools

Shire teams up with Microsoft and EURORDIS for rare disease project

Will work to accelerate the time to diagnosis for children

Shire

Shire has formed a strategic alliance with Microsoft and the European rare diseases patient group organisation EURORDIS to accelerate the time it takes for children with rare diseases to receive a diagnosis.

On average its rare disease patients – around half of whom are children – have to wait for five years before they receive the correct diagnosis for their condition.

To help tackle this diagnostic lag and its attendant health and wellbeing impact, the partners’ new Global Commission will develop an “actionable roadmap”, with technology planned to play a leading part in the work.

The Commission will be jointly led by Shire’s CEO Flemming Ornskov, Microsoft’s chief medical officer Simon Kos and Eurordis CEO Yann Le Cam. In turn they will bring together a dedicated group that will include technology innovators, patient advocates and healthcare providers to focus on the challenge.

Microsoft’s Kos said: “We have an opportunity to harness the power of technology to tackle this painful issue that has affected so many. We’re seeking innovative ways to integrate emerging technologies into our efforts, which will play a critical role as we strive to impact the diagnosis journey.

“Microsoft is committed to this mission and I believe the Global Commission’s wide range of expertise, along with the infusion of technology, will change the state of rare disease diagnosis.”

The roadmap will aim to address areas such as how best to identify and diagnose patients, helping patients and their families be more active in their health care, and providing high-level policy guidance on health outcomes in rare diseases.

Shire’s Ornskov said: “As a physician with training in paediatrics, I’ve seen firsthand the devastating effect not having an accurate diagnosis can have on patients, their families, as well as on the health care providers working to help them. Accelerating the time to diagnosis is critical to improving outcomes for patients and health systems.

“This Global Commission is passionate about bringing forward new and personalised solutions in diagnostics and I’m confident our work will help to transform the lives of children living with a rare disease.”

The Global Commission will beginning its work shortly and expects to publish the roadmap of its findings in early 2019.

20th February 2018

From: Healthcare

Share

Tags

Featured jobs

Subscribe to our email news alerts

PMHub

Add my company
Apex.co.uk Conferences, Events and Exhibition Stands

Apex.co.uk is one of the UK’s leading event and exhibition agencies, specialising in healthcare. We understand your communication goals, whether...

Latest intelligence

ABPI2018
The NHS and ABPI at 70: inching closer to the triple win
The NHS and UK pharma’s ABPI both turn 70 this year. After years of transactional relationships, there’s a will to work more closely - but friction on prices and value...
What pharma marketers can learn from behavioural science
Pharma behavioural science and traditional emotional marketing create a powerful mix of techniques that have impact on real lives....
NEW EU DATA PROTECTION REGULATION POISED TO CHANGE DATA PRIVACY LANDSCAPE
NEW EU DATA PROTECTION REGULATION POISED TO CHANGE DATA PRIVACY LANDSCAPE The bold digital clock featured on the EUGDPR (EU General Data Protection Regulation)1 website indicates – to the second...

Infographics