Please login to the form below

Not currently logged in
Email:
Password:

EC appoints rare disease expert committee

The European Commission has listed the members of the European Union Committee of Experts on Rare Diseases (EUCERD)

The European Commission (EC) has listed the members of the European Union Committee of Experts on Rare Diseases (EUCERD), following four calls for expressions of interest.

The Commission made the formal decision to establish EUCERD on November 30, 2009 (2009/872/EC), replacing the previous organisation, the Rare Diseases Task Force (RDTF).

The new body comprises 51 members drawn from patient organisations, the pharmaceutical industry and representatives of past and present EC projects in rare diseases. These members will work with one representative of each of the 27 EC Member States and a representative of the European Centre for Disease Prevention and Control (ECDC).

The new appointees come from the European rare disease portal Orphanet, European patient organisation EURORDIS, academic and research institutions throughout Europe, and pharmaceutical companies working to develop rare disease products, including Genzyme, Celgene, Orphan Europe and Baxter.

The remit of the EUCERD is to assist the EC with the preparation and implementation of Community activities in the field of rare diseases, in co-operation and consultation with specialist bodies in Member States, relevant European authorities and other relevant stakeholders, as well as fostering exchanges of relevant experience, policies and practices between the parties.

4th August 2010

Share

Featured jobs

Subscribe to our email news alerts

PMHub

Add my company
Swordfish Advertising

At Swordfish Advertising, we believe building an effective brand shouldn't be stressful. Don't get us wrong; it takes blood, sweat...

Latest intelligence

Medopad: the up and coming unicorn transforming remote patient monitoring
Blue Latitude Health speaks to Medopad’s Martha Carruthers to learn how the start-up’s modular apps are helping patients with complex diseases....
segmentation_pie_thumb.jpg
If you’re not thinking segmentation, you’re not thinking
Having a background in market research I’ve been lucky to work on a number of customer segmentations in my time but working in creative communications it is still too rare...
Improving Outcomes in the Treatment of Opioid Dependence Highlights Report
The 16th annual ‘Improving Outcomes in the Treatment of Opioid Dependence’ (IOTOD)conference took place at the Hilton Madrid Airport hotel on 15–16 May 2018....

Infographics