Please login to the form below

Not currently logged in

Intermune supports awareness efforts for IPF

Last week's IPF World Week saw the global patient community unite

IPF World Week 2013 IntermuneBiotech firm Intermune last week lent its backing to IPF World Week to support the awareness campaign for idiopathic pulmonary fibrosis (IPF).

The rare progressive and fatal lung disease is characterised by the formation of scar tissue within the lungs and affects approximately five million people worldwide.

The fundamental aim of IPF World Week is to lessen patients' isolation and fear by demonstrating that there is a growing community of support.

Last week the event saw healthcare professionals, advocacy groups, patients and their families come together to call for an integrated approach to tackling the disease and supporting those affected.

Specifically IPF World Week is working towards creating a national and international support network for IPF patients, raising awareness by informing, training and guiding stakeholders, and offering support and tools to patients and their families.

This year's theme for the Week was 'Breath of Hope' and representative images were selected by European, American and Canadian IPF associations by means of public competitions, with one of the winning images - from the Irish Lung Fibrosis Association - pictured above.

“The two winning images represent support across generations, using soap bubbles as the symbol chosen to promote IPF awareness,” said Rosalba Mele, president of patient association Ama Fuoridalbuio.

In Europe, some 100 initiatives took place in IPF centres of excellence, while a number of US initiatives ran throughout September, driven by Coalition for Pulmonary Fibrosis (CPF) and the Pulmonary Fibrosis Foundation (PFF).

“It's the role of physicians, patient advocacy groups and medical companies to raise awareness of conditions in order to help and provide the tools for individuals with the disease to cope better,” said Professor Jim Egan, director of Ireland's National Advanced Lung Disease Programme.

Patients were also encouraged to embrace digital advances, particularly in the form of online communities such as RareConnect and IPFWorld.

Article by
Tara Craig

1st October 2013

From: Marketing, Healthcare



Featured jobs

Subscribe to our email news alerts


Add my company
Just::Health Communications

Just:: is a different kind of healthcare communications agency. Since 2006, we’ve been collaborating with clients around the world to...

Latest intelligence

It’s all about patient outcomes… right?
Lessons from history: a design thinking perspective...
Emma Walmsley 2
30 women leaders in UK healthcare (part 3)
Continuing our special feature on Women Leaders in UK Healthcare...
Louise Houson
30 Women Leaders in UK Healthcare
The enormous challenges facing UK healthcare mean it needs great leaders. PME’s Group Editor Andrew McConaghie introduces 30 outstanding innovators and trailblazers helping to shape the future...