Novo Nordisk has launched a new website that it hopes will be a simple, centralised repository for haemophilia patients in the US and their carers.
A key feature of RareBleedingDisorders.com will be its news channel, which will cover data from leading medical congresses for patients.
David Cooper, senior director of medical affairs at Novo Nordisk, said: “Novo Nordisk collaborated with medical professionals, people with bleeding disorders and caregivers to create this dynamic resource that helps community members become better informed.
“RareBleedingDisorders.com explores the mechanism of disease, signs and symptoms, and risk factors, as well as the process for appropriate diagnosis and treatment of congenital hemophilia A and B, acquired haemophilia, congenital factor VII deficiency, congenital factor XIII deficiency, Glanzmann’s thrombasthenia and other rare bleeding disorders.”
The website will feature new disease-state specific information announcements and research updates, links to patient organisations, government bodies and professional organisations, and downloadable information on the condition.
