Please login to the form below

DEMAND DIVERSITY REPORT 02: Why is the LGBTQ+ community facing poorer health outcomes due to COVID-19?

We’re all aware that clinical trials have been discussed more widely since the COVID-19 pandemic. While that’s a great thing for raising awareness of clinical trials in general, it’s also highlighted some pretty big issues in clinical research. For example, the world can see how the BAME community has been disproportionately affected by the coronavirus, which has also underlined how unrepresentative clinical trials are of them. And over the last few weeks, we’ve been looking at other populations who are also being left behind.

The LGBTQ+ community have faced a history of marginalisation in clinical trials, leading to challenges and barriers that still deter them from taking part. According to research from the LGBT Foundation, LGBTQ+ people are:

  • Less likely to access healthcare when they need it
  • More likely to be living with HIV
  • More likely to be homeless or insecurely housed
  • More likely to smoke
  • Less likely to be physically active or have a good diet

And as we began to look into the relationship between the LGBTQ+ community and clinical trials via social listening, we’ve seen that individuals face poorer health outcomes as a result of COVID-19…

Insights into the LGBTQ+ community and clinical trials

Of all the online content that we audited, we found it shocking that only 2% was positive, while the other 98% was neutral or negative. Just to give you an idea of what we mean, the most frequently occurring keywords associated with terms like ‘LGBTQ+’ and ‘clinical trials’ are predominantly negative and medical terms such as: “Undiagnosed HIV infection” and “Heart disease risk” - as well as talk around key evidence gaps, donor eligibility and lifestyle factors including diet, alcohol and recent sex.

Traditionally, members of the LGBTQ+ community have been seen as hard‐to‐reach populations for clinical trial recruitment due to historical stigmatisation. Only a decade ago, a review of the inclusion criteria in clinical trials indicated that exclusion of lesbians and gay men from clinical trials in the US isn’t uncommon, particularly in studies with sexual function as an end point. And another study found women were underrepresented in research in 7 out of the 11 disease categories, even when women were more likely to have the disease.

Fast forward to 2020, and COVID-19 clinical trial guidelines are being called out as demonstrating “archaic and homophobic rules” that prevent gay and bisexual men from participating due to blood and plasma donation guidance.

In light of this, our social listening report looks deeper into how LGBTQ+ people still face discrimination and stark health inequalities rooted in historical preconceptions. Plus, we highlight how clinical research will need to address these issues during and following the COVID-19 pandemic.

You can read the full report here:

Downloads

  LGBTQ+ and Clinical Trials
PDF File: 657.2 KB

13th July 2020

Downloads

  LGBTQ+ and Clinical Trials
PDF File: 657.2 KB

Share

Tags

Company Details

COUCH Health

+44 (0) 330 995 0656

Contact Website

Address:
Suite 2.10, Jactin House
24 Hood Street
Manchester
M4 6WX
United Kingdom

Latest content on this profile

New from the PhRMA: Diversity in clinical trials principles summarised
In November 2020, PhRMA announced the first-ever, industry-wide principles on clinical trial diversity. The principles were approved by the PhRMA Boards of Directors and will take effect in April 2021.
COUCH Health
New from the FDA: Diversity in clinical trials guidance summarised
In November 2020, the FDA released guidance to enable greater diversity in clinical trials through changes to eligibility criteria, enrolment practices, and trial designs.
COUCH Health
5 steps to effective clinical trial branding
When recruiting patients for your clinical trial, you want the materials and information around it to be seen as reputable and professional. To make it clear what the clinical trial is about and to ensure consent is informed. And be something that people are going to remember. And with some trials lasting years, building awareness and familiarity is key to improve engagement. That’s where your clinical trial branding comes in…
COUCH Health
October 2020: diversity and inclusion in clinical trials round-up
In our latest round-up of news surrounding diversity and inclusion in clinical trials, we take a closer look into the benefits that diversity can bring to society, learnings that we can take from the COVID-19 pandemic to shift our thinking around diversity and clinical trials, how we can address long-standing barriers to build trust in healthcare, and much more.
COUCH Health
Live panel discussion: Should diverse representation in UK clinical trials be mandatory?
This online event is being held by Innovative Trials, COUCH Health, and Egality Health.  Three organisations who are working to improve diversity in clinical trials.
COUCH Health
What are the biggest barriers in patient recruitment?
With the advances that have been made in clinical research, it’s almost hard to believe that the same challenges still exist within patient recruitment. Unfortunately, traditional clinical research models pose challenges at many levels and ultimately hinder the efficient running of clinical trials.
COUCH Health