Please login to the form below

Delivering change through better rare disease communications

OPEN Health’s Richard Jones, Gemma Allen and Charlotte Richards discuss how pharma can utilise tools, channels and stakeholders to deliver change and enable better outcomes.

Many innovative therapies are being launched in rare disease following years of research that has been driven by the emergence of new technology and regulatory incentives. This brings high levels of hope and expectation to the rare disease community. Consequently, it’s vital that biotechnology and pharmaceutical companies cut through the noise to bring real understanding and informed decision making about the next generation of orphan drugs. Doing this requires communications that encompass the right mix of tools, methodologies, channels and people.

EXPLORING THE CHALLENGES IN RARE DISEASE THROUGH BETTER COMMUNICATION STRATEGIES

OPEN Health recognises that there are multiple challenges in commercialising new therapies in rare disease and is leading future practice in communications by placing emphasis on a ‘patient first’ approach. This includes supporting Benjamin James’s recent analysis on what the future could look like for outcomes driven communications in this space. Benjamin is a trustee and patient advocate for DMD Pathfinders and has recently completed a Masters in Scientific Communications. This provides us with a valued perspective on how improvements can be made for the benefit of patients. A summary of his findings can be found here.

To read the full article click here.

Pink divider

Get in touch

For more information on our commitment to better outcomes in rare disease please contact:

Gavin Jones, Director of Rare Disease, OPEN Health

Gavinjones@openhealthgroup.com

28th February 2020

Share

Company Details

OPEN Health

+44 1628 481112

Contact Website

Address:
The Weighbridge
Brewery Courtyard
High Street
Marlow
Buckinghamshire
SL7 2FF
United Kingdom

Latest content on this profile

COVID-19 message to clients from OPEN Health CEO, David Rowley

OPEN Health
The field team are off the road! What should they do next?
Written by Briony Frost , OPEN Health
OPEN Health
"New models" for agency pitching. My "Top takeaways" from the PM Society event
Paul Morrissey, Global Business Director, OPEN Health
OPEN Health
Mapping the clinical and emotional journey to better understand lived experience
Written by OPEN Health's Chris Hodgson, Neil Rees, Sumira Riaz and Karen Petticrew
OPEN Health
Delivering Medical Communications when travel is restricted: solving the 6 most common problems
Louise Carrington and Gemma Allen, OPEN Health
OPEN Health
13th Edition - Spring MEDAFFAIRS Leaders Forum
OPEN VIE (Amanda Pulfer, Strategic Director and Sergio Diaz, Patient Centred Outcomes Consultant) were delighted to speak at the Medical Affairs Leaders Forum yesterday.
OPEN Health