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awareness

This page shows the latest awareness news and features for those working in and with pharma, biotech and healthcare.

UK introduces Rare Diseases Framework to improve the lives of people with rare diseases

UK introduces Rare Diseases Framework to improve the lives of people with rare diseases

bluebird bio releases a video to raise awareness – Rare Disease Day 2021 is on 28 February. ... Increasing awareness of rare diseases and use of genomic testing among healthcare professionals.

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  • Why we need to look at rare diseases in a different way Why we need to look at rare diseases in a different way

    28 February 2021, Rare Disease Day aims to raise awareness of rare diseases and the impact they have on patients’ lives. ... The lack of awareness and information, challenges to diagnose rare diseases, as well as the lack of effective treatments and

  • Why we need to look at rare diseases in a different way

    28 February 2021, Rare Disease Day aims to raise awareness of rare diseases and the impact they have on patients’ lives. ... The lack of awareness and information, challenges to diagnose rare diseases, as well as the lack of effective treatments and

  • Rare Disease Day – why it’s important to show your stripes Rare Disease Day – why it’s important to show your stripes

    Nucleus Global's EU Strategy Director, Amanda Henkel, writes about the importance of continuing to raise awareness of rare diseases. ... But the first step in all of this is awareness – so get your stripes on and get involved.

  • Rare Disease Day 2021 Rare Disease Day 2021

    from awareness generated by patient groups. ... We recognise the importance of this day for rare disease patient groups in supporting their communities and raising awareness, and it’s for this reason that OPEN Health is saying “Shhhh”

  • #DemandDiversity: The science behind diversity #DemandDiversity: The science behind diversity

    We believe it’s important for us to constantly raise awareness around the lack of diversity in clinical trials, until a difference is truly made. ... Plus, buy-in from community advocates, representatives or medical staff from ethnic communities (who

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