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Batten Disease

Text reads 'We couldn't 'B' happier alongside CDP logo.

Another year, another B!

Louise Jones, Cuttsy+Cuttsy's Sustainability Officer reflects on their latest year of carbon reporting through CDP and on achieving another B rating.

Cuttsy + Cuttsy

- PMLiVE

Radboud researchers use new method to improve diagnosis of rare diseases

Approximately 7,000 rare diseases collectively impact up to 5.9% of the global population

- PMLiVE

Clinigen launches ‘What is Possible?’ campaign on Rare Disease Day to accelerate access to medicines

There are over 7,000 rare diseases impacting more than 300 million people globally

- PMLiVE

Rare disease market access – Launching orphan drugs in secondary markets: the Nordic and MENA regions

Join us live at 1.00pm (GMT)/2.00pm (CET)/8.00am (EST) on Thursday 29th February, to explore rare disease market access challenges and learn more about these high potential markets.

Mtech Access

Sound Design Fundamentals

The Subtle Art of Sound in Healthcare Videos

When crafting a healthcare video, we often become engrossed in just the visual aspect. However, neglecting sound can be a missed opportunity. Sound is not just an auditory experience; it’s...

The Good Ideas Group

The Power of Visuals

The Power of Visuals.

Emotion is the core of healthcare storytelling, but there are many ways to do it. This week, Jon from our Design Team explores a few mediums for doing so, from...

The Good Ideas Group

GIG Newsletter

Actually, Sometimes AI Can Jump in a Lake

In his latest blog, Tim considers how some early adopters of AI are delegating the responsibilities and roles that make us human.

The Good Ideas Group

protraint of older woman with brain activity on grey background and text thinking  creatively about patient involvement in publications

Thinking creatively about patient involvement in publications

Bedrock's freethinking spirit to reimagine publications is on course to include patients in the full end to end of the publication process.

Bedrock Healthcare Communications

- PMLiVE

Rare Disease Day 2023 – raising awareness around the world

Around one in 17 people will be affected by a rare disease at some point in their lives

- PMLiVE

The Need for and Impact of Rare Disease Education

Physicians are often told that when they hear hoofbeats, think horses, not zebras — to look for the most common cause of a patient’s symptoms first. While this advice may...

Medscape Education Global

Medscape Education: Rare Diseases

It's only a few days until #RareDiseaseDay2023 on 28th February. We're taking a patient centered approach, this means understanding their journey so we can better understand how we can help to...

Medscape Education Global

Together Caring for Rare Disease

Medscape Education and Medics4RareDisease are partnering on a Rare Disease Day awareness campaign. The campaign will form part of a series of short programs produced by ITN in collaboration with Genetic Alliance...

Medscape Education Global

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