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cystic fibrosis

This page shows the latest cystic fibrosis news and features for those working in and with pharma, biotech and healthcare.

MPs threaten to publish Vertex’s Orkambi price if no deal struck

MPs threaten to publish Vertex’s Orkambi price if no deal struck

Gives deadline of 30 November for long-running row to end. MPs are threatening to make public Vertex’s currently confidential price offer for its cystic fibrosis (CF) drug Orkambi, in ... The company simply says that it “welcomes the Committee's

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  • 500 miles over 5 days - 2 brave cyclists!

    Synergy Vision are cycling from their London headquarters to their Dublin office, and will be travelling about 500 miles to raise money for two very worthwhile charities: The Cystic Fibrosis Trust

  • Patient Perspective - Cystic Fibrosis

    Patient Perspective - Cystic Fibrosis. At Synergy Vision, we aim to make a difference to patients. ... In the second video in our series on patient perspectives we are talking about cystic fibrosis.

  • Synergy Vision MD appointed as trustee of the Cystic Fibrosis Trust

    Managing director of Synergy Vision Ffyona Dawber has been appointed to the Cystic Fibrosis Trust’ s board of trustees. ... I have both friends and family living with cystic fibrosis, each of whom have inspired me to raise awareness about the real-life

  • Celebrities communicating a health or charity message by Jenny Agutter

    I have worked longest with The  Cystic Fibrosis Trust after finding out 35 years ago, when my niece was born, that she had the life threatening condition Cystic Fibrosis. ... She was a friend and this annual Christmas carol concert is a wonderful way to

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