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patient advocacy

This page shows the latest patient advocacy news and features for those working in and with pharma, biotech and healthcare.

D-day: time to make digital deliver

D-day: time to make digital deliver

There are lots of businesses creating health apps, but it’s questionable how many of them are building them in collaboration with pharma companies, patient advocacy groups or other health stakeholders,” ... It should not only encompass advocacy

Latest news

  • Medical cannabis now available on prescription, for some Medical cannabis now available on prescription, for some

    The change in policy comes on the back of months of campaigning by patient advocacy groups and means that specialist doctors can prescribe products containing cannabis, cannabis resin or cannabinol in ... The UK's rescheduling of cannabis-based medicine

  • ICER says Alnylam’s Onpattro should cost 90%-95% less ICER says Alnylam’s Onpattro should cost 90%-95% less

    Nevertheless, Alnylam’s price for Onpattro of $450, 000 per patient per year “even taking into account expected discounts, far exceeds commonly cited cost-effectiveness thresholds,” according to ICER’s chief ... We heard from patients, patient

  • Taming the Monster Taming the Monster

    Individual departments are set up to focus on specific stakeholder groups; for example, market access teams focus on payers, PR/communications teams interact with patient advocacy groups and commercial teams engage

  • New alliance launches to usher digital therapeutics into the mainstream New alliance launches to usher digital therapeutics into the mainstream

    As the entire industry prepares for what's next, we are excited to represent digital therapeutics in this rapidly evolving environment,  working with regulators, patient advocacy groups, providers, payers, and manufacturers.".

  • Pharma’s digital patient engagement innovators identified Pharma’s digital patient engagement innovators identified

    With resources that range from educational videos to healthcare service locators and beyond, the Swiss pharma company is able to drive “patient support and awareness with their advocacy campaigns”. ... They add that companies often provide the same

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Approximately 3 fully matching, plus 87 partially matching documents found.

Latest Intelligence

  • Five questions guiding the way to actual patient-centricity Five questions guiding the way to actual patient-centricity

    There are also proven ways and processes to successfully engage and collaborate with patient advocacy groups. ... 3 Are we ready to offer value (beyond the drug) to the patient?

  • The critical role of science in healthcare communications The critical role of science in healthcare communications

    Add to this, today’s empowered patient, who has more access to health information, and misinformation, from both valid and questionable Internet sources. ... Going forward, in addition to using our knowledge and expertise to bring added value to our

  • Trust me, I’m from pharma Trust me, I’m from pharma

    Patient advocacy groups have become very influential. However, their perception of pharma is arguably not favourable. ... Shifting this perception is vital. “There’s a great willingness among pharma companies to engage with patient advocacy

  • Patient outcomes in practice: delivering value that transforms lives Patient outcomes in practice: delivering value that transforms lives

    It is responding with patient-centric corporate missions, and patient outcomes-driven visions, and investing in laudable initiatives with the aim of improving patient outcomes. ... incorporating patient-reported outcomes measures in real-world data

  • Accelerating diagnosis in rare disease Accelerating diagnosis in rare disease

    appropriate. Patients themselves can also be empowered to become ‘experts in their disease’ and utilise information developed by the patient advocacy groups, often in collaboration with biopharmaceutical companies. ... On top of communicating

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Approximately 0 fully matching, plus 24 partially matching documents found.

Latest appointments

  • Ipsen hires general manager, Laura Hamill joins Gilead and Orchard expands leadership team Ipsen hires general manager, Laura Hamill joins Gilead and Orchard expands leadership team

    During her new role, Payne will be responsible for leading the global corporate communications and external affairs function, spanning internal and external communications, investor relations, patient advocacy and government relations. ... Katie is a

  • Weekly comms appointments Weekly comms appointments

    Turner has been with AXON for almost a decade, during which she has lead the agency’s focus in patient advocacy and grass-roots communications activities.

  • Weekly industry appointments Weekly industry appointments

    Leider’s new role as chief medical officer will see him take responsibility for leading Gelesis’ overall medical strategy, including overseeing medical affairs functions and programming with medical associations, patient advocacy

  • Pegasus bolsters team Pegasus bolsters team

    Former HAVAS Just employee, Harriet Middleton joins the company as its senior account director following a background in healthcare public affairs and experience in stakeholder relations, policy and patient advocacy.

  • Clark Health Communications expands team Clark Health Communications expands team

    Formerly serving at Ketchum in London and Cube Public Relations in Sydney, Moore’s expertise lies in healthcare communications, PR and patient advocacy.

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Approximately 0 fully matching, plus 13 partially matching documents found.

Latest from PMHub

  • Biotech: it's a people business

    Biotech organisations make it their mission to fully understand patients’ needs through patient advocacy groups and innovative research. ... Patient Advocacy Groups (PAGs) are crucial because a company can’t develop and meet patients’ needs unless

  • PEGASUS PHARMA TEAM GOES FROM STRENGTH TO STRENGTH WITH NEW APPOINTMENTS AND SENIOR PROMOTIONS

    Harriet has a strong background in healthcare public affairs, and significant experience in stakeholder relations, policy and patient advocacy.

  • Acute leukaemia patients get new online information centre that will help them get the best possible care

    A unique collaboration between some of the world's leading leukaemia experts and the patient community in the UK and across Europe has resulted in the development of a ... In addition, they provide practical tips on living well with cancer, and coping

  • No Voice, No Choice

    This is a real example of patient centricity at work and an important opportunity to make a difference in an area that is ripe for change”. ... Working across a range of stakeholders including big pharma, smaller biotech, patient advocacy, charities

  • Lexington Health

    Our clients include major blue-chip companies, trade unions, campaign and patient advocacy groups and charities. ... We understand the need for concise, consistent and coherent communications and engagement and help our clients to secure maximum coverage

More from PMHub
Approximately 5 fully matching, plus 39 partially matching documents found.

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HME are an innovative and technology enabled agency offering our clients over 35+ years of knowledge and expertise in delivering...

Latest intelligence

The UK’s new five-year pricing agreement
Pharma has agreed to capped growth again - in exchange for uptake promises...
Digital applications are transforming the market access landscape
Organisations are leveraging new technology to implement a wider range of business models and, in essence, drive market access success by working smarter, faster and with greater economy....
Escaping the spin cycle of sub-optimal launch
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