Please login to the form below

Not currently logged in
Email:
Password:

patient advocacy

This page shows the latest patient advocacy news and features for those working in and with pharma, biotech and healthcare.

Q&A: Elizabeth Egan

Q&A: Elizabeth Egan

What’s the best thing about working in healthcare comms? The opportunity to blend science, strategy, creativity and technology to create better patient outcomes across multiple therapy areas. ... He’s had Parkinson’s since the age of seven, yes

Latest news

  • Q&A: Kate Paxton Q&A: Kate Paxton

    I was very honoured to develop and launch the esteemed patient advocacy group Families Fighting Flu, and helping to launch the first community-ready nasal naloxone in the US during the

  • No patient left behind No patient left behind

    We can do that through patient advocacy and it’s important that we work with patient organisations to make sure we fully understand the needs we’re trying to address. ... The patient’s perspective. With rare diseases, the patient often becomes the

  • Chiesi launches new rare disease R&D division Chiesi launches new rare disease R&D division

    identify opportunities for us to collaborate in research and patient advocacy,” added Chiesi. .

  • Novartis faces criticism over Zolgensma ‘health lottery’ Novartis faces criticism over Zolgensma ‘health lottery’

    Importantly, the group also presented concerns over the lack of involvement of neuromuscular experts as well as patient organisations in consulting on the design and implementation of the programme. ... In response to the criticism, Novartis said that it

  • The Unhappiness Project The Unhappiness Project

    Occasionally, one will meet a patient who went through an acute scenario and was pleasantly surprised at how it turned out. ... Patient advocacy groups, while doing incredibly important work, often struggle for funding and to find a clear voice that

More from news
Approximately 3 fully matching, plus 100 partially matching documents found.

Latest Intelligence

  • Keep your audiences close Keep your audiences close

    Bureaucratic hurdles have made planning patient advisory boards and even meetings with patient advocacy groups more onerous than ever. ... Bringing the audience’s mindset into everything we do. While it would be truly amazing to be able to bring a

  • Encouraging patient participation in real-world studies Encouraging patient participation in real-world studies

    What’s the role of patient advocacy groups in encouraging patient participation? ... information. Patient advocacy organisations are emerging as major contributors to the drug discovery process and can often determine product evolution, influence

  • Staying ahead in the era of precision medicine Staying ahead in the era of precision medicine

    Giving patients, their physicians and carers patient friendly information about clinical trials: what they can expect and why. ... Empowering and uniting patient advocacy groups to raise awareness around the need to evolve the clinical trial and approval

  • The Golden Goose The Golden Goose

    The idea that a fully insured patient might be denied immediate, gold-standard, top-shelf treatment, no matter what the cost, is anathema to Americans. ... Yet another market-friendly idea that enjoys broad support among patient advocacy groups is

  • Understanding the patient journey Understanding the patient journey

    You can also share insights with patient advocacy groups to help inform their campaigns or communications, thus strengthening relationships with this key section of the patient community. ... Alex Morton is a Patient Communications Specialist at Nucleus

More from intelligence
Approximately 0 fully matching, plus 35 partially matching documents found.

Latest appointments

  • Christie Anbar appointed global healthcare lead at Ruder Finn Christie Anbar appointed global healthcare lead at Ruder Finn

    In her new role, Anbar will lead the company’s partnership with clients ranging from major biopharmaceutical companies to emerging biotech, tech and health data pioneers, as well as patient advocacy ... In those roles, she led award-winning work for a

  • New faces at Lucid Group and ZPB Associates New faces at Lucid Group and ZPB Associates

    of our end goal, which is improving patient outcomes,” said Goodwin. ... She also helped the client to navigate complex patient advocacy relations and stakeholder engagement for the launch of the new gene therapy.

  • Ipsen hires general manager, Laura Hamill joins Gilead and Orchard expands leadership team Ipsen hires general manager, Laura Hamill joins Gilead and Orchard expands leadership team

    During her new role, Payne will be responsible for leading the global corporate communications and external affairs function, spanning internal and external communications, investor relations, patient advocacy and government relations. ... Katie is a

  • Weekly comms appointments Weekly comms appointments

    Turner has been with AXON for almost a decade, during which she has lead the agency’s focus in patient advocacy and grass-roots communications activities.

  • Weekly industry appointments Weekly industry appointments

    Leider’s new role as chief medical officer will see him take responsibility for leading Gelesis’ overall medical strategy, including overseeing medical affairs functions and programming with medical associations, patient advocacy

More from appointments
Approximately 0 fully matching, plus 15 partially matching documents found.

Latest from PMHub

More from PMHub
Approximately 7 fully matching, plus 52 partially matching documents found.

COVID-19 Updates and Daily News

Featured jobs

PMHub

Add my company
Wilmington Healthcare

A heritage to envy Wilmington Healthcare brings together the data intelligence specialisms of Binley’s, NHiS, Wellards and HSJ to create...

Latest intelligence

Kulveer Singh
Surviving cancer: a new era for patients
Now more than ever, a shift in perspective is needed...
Crisis? No problem!
Issues planning & management for pharma spokespeople, by Andrew Smith...
Are patient recruitment and retention rates rising or falling?
First up, the good news. Over the past seven years, clinical trial recruitment rates have been on the rise....

Infographics