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patient advocacy

This page shows the latest patient advocacy news and features for those working in and with pharma, biotech and healthcare.

Q&A: Elizabeth Egan

Q&A: Elizabeth Egan

What’s the best thing about working in healthcare comms? The opportunity to blend science, strategy, creativity and technology to create better patient outcomes across multiple therapy areas. ... He’s had Parkinson’s since the age of seven, yes

Latest news

  • Q&A: Kate Paxton Q&A: Kate Paxton

    I was very honoured to develop and launch the esteemed patient advocacy group Families Fighting Flu, and helping to launch the first community-ready nasal naloxone in the US during the

  • No patient left behind No patient left behind

    We can do that through patient advocacy and it’s important that we work with patient organisations to make sure we fully understand the needs we’re trying to address. ... The patient’s perspective. With rare diseases, the patient often becomes the

  • Chiesi launches new rare disease R&D division Chiesi launches new rare disease R&D division

    identify opportunities for us to collaborate in research and patient advocacy,” added Chiesi. .

  • Novartis faces criticism over Zolgensma ‘health lottery’ Novartis faces criticism over Zolgensma ‘health lottery’

    Importantly, the group also presented concerns over the lack of involvement of neuromuscular experts as well as patient organisations in consulting on the design and implementation of the programme. ... In response to the criticism, Novartis said that it

  • The Unhappiness Project The Unhappiness Project

    Occasionally, one will meet a patient who went through an acute scenario and was pleasantly surprised at how it turned out. ... Patient advocacy groups, while doing incredibly important work, often struggle for funding and to find a clear voice that

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Latest Intelligence

  • Staying ahead in the era of precision medicine Staying ahead in the era of precision medicine

    Giving patients, their physicians and carers patient friendly information about clinical trials: what they can expect and why. ... Empowering and uniting patient advocacy groups to raise awareness around the need to evolve the clinical trial and approval

  • The Golden Goose The Golden Goose

    The idea that a fully insured patient might be denied immediate, gold-standard, top-shelf treatment, no matter what the cost, is anathema to Americans. ... Yet another market-friendly idea that enjoys broad support among patient advocacy groups is

  • Understanding the patient journey Understanding the patient journey

    You can also share insights with patient advocacy groups to help inform their campaigns or communications, thus strengthening relationships with this key section of the patient community. ... Alex Morton is a Patient Communications Specialist at Nucleus

  • The fight for affordable insulin The fight for affordable insulin

    patients. In some ways it is a distraction from our advocacy and our push for legislative change.”. ... They do a lot of important work, but most patient advocacy organisations take funding from the industry, and there are studies out there which show

  • What pharma marketers can learn from Disney

    Channels such as YouTube, while immensely popular among both HCPs and patients, are considered off-limits by many companies, while patient advocacy groups capitalise on them for disease awareness.

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Latest appointments

  • Christie Anbar appointed global healthcare lead at Ruder Finn Christie Anbar appointed global healthcare lead at Ruder Finn

    In her new role, Anbar will lead the company’s partnership with clients ranging from major biopharmaceutical companies to emerging biotech, tech and health data pioneers, as well as patient advocacy ... In those roles, she led award-winning work for a

  • New faces at Lucid Group and ZPB Associates New faces at Lucid Group and ZPB Associates

    of our end goal, which is improving patient outcomes,” said Goodwin. ... She also helped the client to navigate complex patient advocacy relations and stakeholder engagement for the launch of the new gene therapy.

  • Ipsen hires general manager, Laura Hamill joins Gilead and Orchard expands leadership team Ipsen hires general manager, Laura Hamill joins Gilead and Orchard expands leadership team

    During her new role, Payne will be responsible for leading the global corporate communications and external affairs function, spanning internal and external communications, investor relations, patient advocacy and government relations. ... Katie is a

  • Weekly comms appointments Weekly comms appointments

    Turner has been with AXON for almost a decade, during which she has lead the agency’s focus in patient advocacy and grass-roots communications activities.

  • Weekly industry appointments Weekly industry appointments

    Leider’s new role as chief medical officer will see him take responsibility for leading Gelesis’ overall medical strategy, including overseeing medical affairs functions and programming with medical associations, patient advocacy

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Latest from PMHub

More from PMHub
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COVID-19 Updates and Daily News

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