Please login to the form below

Not currently logged in
Email:
Password:

patient advocacy

This page shows the latest patient advocacy news and features for those working in and with pharma, biotech and healthcare.

The five-step, rare disease-ready checklist

The five-step, rare disease-ready checklist

Get personal. First, know the patient advocacy community. Schedule meetings with key liaisons of these organisations, know their challenges and struggles, and establish trust. ... This takes at least a year, so start early. Caregivers of patients with

Latest news

  • bluebird bio marks Rare Disease Day 2021 with launch of patient testimonial video bluebird bio marks Rare Disease Day 2021 with launch of patient testimonial video

    Nicoletta Bertelli, European Thalassaemia Patient Advocacy Lead at bluebird bio. ... We decided to collaborate with patient groups to commission this video to raise awareness about what this disease really means.

  • Launch leaders' blog: what should launch leaders be measuring? Launch leaders' blog: what should launch leaders be measuring?

    Are we truly engaging and changing the knowledge, attitudes and behaviours of target customers in order to improve patient outcomes? ... Engagement and support of the patient advocacy community and media. Internal launch team belief in the success of the

  • Q&A: Elizabeth Egan Q&A: Elizabeth Egan

    What’s the best thing about working in healthcare comms? The opportunity to blend science, strategy, creativity and technology to create better patient outcomes across multiple therapy areas. ... He’s had Parkinson’s since the age of seven, yes

  • Q&A: Kate Paxton Q&A: Kate Paxton

    I was very honoured to develop and launch the esteemed patient advocacy group Families Fighting Flu, and helping to launch the first community-ready nasal naloxone in the US during the

  • No patient left behind No patient left behind

    We can do that through patient advocacy and it’s important that we work with patient organisations to make sure we fully understand the needs we’re trying to address. ... The patient’s perspective. With rare diseases, the patient often becomes the

More from news
Approximately 3 fully matching, plus 103 partially matching documents found.

Latest Intelligence

More from intelligence
Approximately 0 fully matching, plus 40 partially matching documents found.

Latest appointments

More from appointments
Approximately 0 fully matching, plus 16 partially matching documents found.

Latest from PMHub

More from PMHub
Approximately 13 fully matching, plus 63 partially matching documents found.

PMEA Awards 2020

COVID-19 Updates and Daily News

Featured jobs

PMHub

Add my company
Impetus Digital

Impetus Digital has offered virtual advisory boards, clinical trial investigator consortiums, co-author publication working groups, steering committees, and medical education...

Latest intelligence

01 PME-APR21 Cover.jpg
Virtual congresses: video thrilled the cardio tsar
Chris Ross explores the key learnings from a year of virtual congresses...
When Will We Be Back To Normal?
The definitive question of 2021, whether you’re a homeschooling parent, a homebound professional, a wanderer with nowhere to go… or all three at once....
How to tell your healthcare story.
Healthcare research is not a simple story and the people in charge of those moments need to be careful about the story that they tell....

Infographics