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patient advocacy

This page shows the latest patient advocacy news and features for those working in and with pharma, biotech and healthcare.

BMS buoyed by FDA approval of Celgene’s myelofibrosis drug

BMS buoyed by FDA approval of Celgene’s myelofibrosis drug

Myelofibrosis patient group MPN Advocacy and Education International  tweeted that the approval was “great news” and that the patient community “has waited a long time for more than one treatment option”.

Latest news

  • New digital director for 90TEN New digital director for 90TEN

    Sarah Avent has joined the team from Four Health Communications. Sarah brings over fifteen years of healthcare communications and patient advocacy experience, having led multiple award-winning campaigns focused on connecting ... and empowering patient

  • Biogen bounces back with Spinraza early treatment data Biogen bounces back with Spinraza early treatment data

    A few years ago, SMA patients had no treatment options and faced significant care challenges,” said Kenneth Hobby, President of Cure SMA, a patient advocacy organisation dedicated to the treatment and ... Novartis has set its price at a record-breaking

  • GCI Health hires six new starters GCI Health hires six new starters

    Joining from Four Health Communications (previously Packer Forbes Communications) as Director, Gemma Medcalf (previously Rickwood) brings 10 years’ experience in healthcare communications including media relations, patient advocacy, ethical and

  • Envision appoints new patient partnerships leader

    years of experience and skills working with pharma, clinicians and patient advocacy groups”. ... amplify the patient voice and ensure patients have access to the very best in scientific research and understanding.”.

  • IQVIA sees market slowdown looming for pharma IQVIA sees market slowdown looming for pharma

    costs per patient “are challenging current payment models”. ... Pharma companies will also invest more in patient affairs and advocacy, in pursuit of improvements in patient engagement and trial design.

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Latest Intelligence

  • The Golden Goose The Golden Goose

    The idea that a fully insured patient might be denied immediate, gold-standard, top-shelf treatment, no matter what the cost, is anathema to Americans. ... Yet another market-friendly idea that enjoys broad support among patient advocacy groups is

  • Understanding the patient journey Understanding the patient journey

    You can also share insights with patient advocacy groups to help inform their campaigns or communications, thus strengthening relationships with this key section of the patient community. ... Alex Morton is a Patient Communications Specialist at Nucleus

  • The fight for affordable insulin The fight for affordable insulin

    patients. In some ways it is a distraction from our advocacy and our push for legislative change.”. ... They do a lot of important work, but most patient advocacy organisations take funding from the industry, and there are studies out there which show

  • What pharma marketers can learn from Disney

    Channels such as YouTube, while immensely popular among both HCPs and patients, are considered off-limits by many companies, while patient advocacy groups capitalise on them for disease awareness.

  • Rare disease trials Q&A Rare disease trials Q&A

    and the clinical characteristics of the patient population selected for the clinical trial. ... Partnerships with patient organisations, advocacy groups, patient registries and clinician education to increase disease awareness, minimise time to diagnosis

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Latest appointments

  • New faces at Lucid Group and ZPB Associates New faces at Lucid Group and ZPB Associates

    of our end goal, which is improving patient outcomes,” said Goodwin. ... She also helped the client to navigate complex patient advocacy relations and stakeholder engagement for the launch of the new gene therapy.

  • Ipsen hires general manager, Laura Hamill joins Gilead and Orchard expands leadership team Ipsen hires general manager, Laura Hamill joins Gilead and Orchard expands leadership team

    During her new role, Payne will be responsible for leading the global corporate communications and external affairs function, spanning internal and external communications, investor relations, patient advocacy and government relations. ... Katie is a

  • Weekly comms appointments Weekly comms appointments

    Turner has been with AXON for almost a decade, during which she has lead the agency’s focus in patient advocacy and grass-roots communications activities.

  • Weekly industry appointments Weekly industry appointments

    Leider’s new role as chief medical officer will see him take responsibility for leading Gelesis’ overall medical strategy, including overseeing medical affairs functions and programming with medical associations, patient advocacy

  • Pegasus bolsters team Pegasus bolsters team

    Former HAVAS Just employee, Harriet Middleton joins the company as its senior account director following a background in healthcare public affairs and experience in stakeholder relations, policy and patient advocacy.

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