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patient advocacy

This page shows the latest patient advocacy news and features for those working in and with pharma, biotech and healthcare.

ICER says Alnylam’s Onpattro should cost 90%-95% less

ICER says Alnylam’s Onpattro should cost 90%-95% less

Nevertheless, Alnylam’s price for Onpattro of $450, 000 per patient per year “even taking into account expected discounts, far exceeds commonly cited cost-effectiveness thresholds, ”according to ICER’s chief ... We heard from patients, patient

Latest news

  • Taming the Monster Taming the Monster

    Individual departments are set up to focus on specific stakeholder groups; for example, market access teams focus on payers, PR/communications teams interact with patient advocacy groups and commercial teams engage

  • New alliance launches to usher digital therapeutics into the mainstream New alliance launches to usher digital therapeutics into the mainstream

    As the entire industry prepares for what's next, we are excited to represent digital therapeutics in this rapidly evolving environment, working with regulators, patient advocacy groups, providers, payers, and manufacturers.".

  • Pharma’s digital patient engagement innovators identified Pharma’s digital patient engagement innovators identified

    Pharma’ s digital patient engagement innovators identified. Novartis, Pfizer and Sanofi named best-in-class by Decision Resources Group. ... With resources that range from educational videos to healthcare service locators and beyond, the Swiss pharma

  • Facing the new wave of biosimilars Facing the new wave of biosimilars

    Facing the new wave of biosimilars. Don’t drown out the patient voice, says advocacy group. ... Over the past year alone, GAfPA has hosted patient advocacy workshops in Barcelona, Copenhagen, Budapest and at the EU Parliament.

  • Power to the people Power to the people

    This is perhaps unfair. Industry now partners much more effectively with patient advocacy groups, government bodies and other health experts who provide independent input into pharma’s commercial strategies - and companies ... a highly regulated

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Approximately 3 fully matching, plus 97 partially matching documents found.

Latest Intelligence

  • Trust me, I’m from pharma Trust me, I’m from pharma

    Patient advocacy groups have become very influential. However, their perception of pharma is arguably not favourable. ... Shifting this perception is vital. “There’s a great willingness among pharma companies to engage with patient advocacy groups,

  • Patient outcomes in practice: delivering value that transforms lives Patient outcomes in practice: delivering value that transforms lives

    Patient outcomes in practice: delivering value that transforms lives. Over the next five years, the NHS needs to drive efficiencies of £22bn. ... incorporating patient-reported outcomes measures in real-world data programmes, and patient advocacy support

  • GDPR and the NHS ‘opt out’: a chance to engage patients in research GDPR and the NHS ‘opt out’: a chance to engage patients in research

    Consequently, patient advocacy groups, such as UseMYData, are now championing the appropriate use of patient data for research. ... In other words, informed consent underpins not only patient centricity but the future of research.

  • Accelerating diagnosis in rare disease Accelerating diagnosis in rare disease

    appropriate. Patients themselves can also be empowered to become ‘experts in their disease’and utilise information developed by the patient advocacy groups, often in collaboration with biopharmaceutical companies. ... On top of communicating

  • Accelerating diagnosis in rare disease Accelerating diagnosis in rare disease

    appropriate. Patients themselves can also be empowered to become ‘experts in their disease’and utilise information developed by the patient advocacy groups, often in collaboration with biopharmaceutical companies. ... On top of communicating

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Approximately 0 fully matching, plus 26 partially matching documents found.

Latest appointments

  • Ipsen hires general manager, Laura Hamill joins Gilead and Orchard expands leadership team Ipsen hires general manager, Laura Hamill joins Gilead and Orchard expands leadership team

    During her new role, Payne will be responsible for leading the global corporate communications and external affairs function, spanning internal and external communications, investor relations, patient advocacy and government relations. ... Katie is a

  • Weekly industry appointments Weekly industry appointments

    Leider’s new role as chief medical officer will see him take responsibility for leading Gelesis’overall medical strategy, including overseeing medical affairs functions and programming with medical associations, patient advocacy

  • Pegasus bolsters team Pegasus bolsters team

    Former HAVAS Just employee, Harriet Middleton joins the company as its senior account director following a background in healthcare public affairs and experience in stakeholder relations, policy and patient advocacy.

  • Clark Health Communications expands team Clark Health Communications expands team

    Formerly serving at Ketchum in London and Cube Public Relations in Sydney, Moore’s expertise lies in healthcare communications, PR and patient advocacy.

  • AZ’s Kelly Teasdale moves to Burson-Marsteller AZ’s Kelly Teasdale moves to Burson-Marsteller

    Most recently, Teasdale served as global brand communications director at AstraZeneca, where she was responsible for the firm's global patient advocacy and patient-centricity communication strategies for oncology and cardiovascular ... develop our

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More from PMHub
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