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patient advocates

This page shows the latest patient advocates news and features for those working in and with pharma, biotech and healthcare.

Q&A: Kate Callan

What has been your career highlight to date? A big highlight for me was a patient education programme called Joint Decisions. ... It was a combination of a great team and clients, and getting to collaborate closely with really amazing patient advocates

Latest news

How technology is driving new trends in patient engagement

Patient advocates around the world are working with the life sciences industry in a collaborative fashion, and that is only going to bring about more innovation. ... Alicia Staley is Senior Director of Patient Engagement at Medidata. 7th October 2019.
Verily unveils next-gen trials alliance with Novartis, Pfizer

Now the company is teaming up with Novartis, Otsuka, Pfizer and Sanofi to transform clinical trials - which the industry, regulators, leading research and patient advocates all agree rely on outdated, cumbersome ... The partners say they aim to develop
CGRP migraine drugs need prior approval for use, recommends ICER

At that meeting, panel members drawn from patient advocates, physicians, public and private payers, and drug manufacturers voted that evidence was adequate to demonstrate a net health benefit of the CGRP
Shire teams up with Microsoft and EURORDIS for rare disease project

Will work to accelerate the time to diagnosis for children. Shire has formed a strategic alliance with Microsoft and the European rare diseases patient group organisation EURORDIS to accelerate the time ... In turn they will bring together a dedicated
Facing the new wave of biosimilars

GAfPA campaigns across Europe to ensure patient access to appropriate clinically approved therapies. ... GAfPA has and continues to work with the European Federation of Crohn’s and Colitis Associations to increase patient awareness about these

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Latest Intelligence

Encouraging patient participation in real-world studies

plc, we explore the intersection between real-word studies and patient participation in drug development. ... Truly understanding patient needs and priorities means engaging directly with patients, families and patient advocates to develop high-value,
How pharma can unlock the potential of influencer marketing

Building a successful campaign around influencer marketing. By Beth Whitworth. In this digital age, where the patient is increasingly at the centre of our campaigns, influencer marketing feels like a natural ... The advocates have proven to be critical
Reaching the new influencers

We’re already living in a new world, and reaching its new influencers - whether these are payers, population health specialists or patient advocates - requires that leaders be fully engaged with it. ... It demands fluency not just with the science
Beyond caring: learning from the unsung advocates in cancer care

What can we do for advocates? Increasing patient access to advocates has the potential to fundamentally change the cancer experience for patients and their families. ... However it’s obvious that the patient experience doesn’t stop here. Advocates
The gold standard of scientific evidence

Traditionally, few RCTs would collect patient-reported outcomes, although that is beginning to change. ... Policymakers, industry, patient advocates and others should work together to develop new sources of high-quality real-world data.

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Latest from PMHub

INFOSHEET 02: Improving diversity in your patient recruitment strategy

Developing relationships with patient advocacy groups is vital to the success of any clinical study. ... If your study needs to reach an established patient group, or a minority population, then you’ve got to engage community leaders, patient advocates,
OPEN Health reflections on the World Orphan Drug Congress in Barcelona

including the patient voice in their presentations, but we must go further and increase the number of patient-led sessions in 2020! ... It was also encouraging to see patients and patient advocates present at the conference sharing
A patient view on the ABPI’s patient collaboration sourcebook

It sets out a thorough and accessible foundation for collaborations between patient advocates and pharmaceutical organisations. ... This conflict of identity surfaces in the sourcebook too. It is a great testament to the existing collaboration between
Intellus round up 2018

The theme of the conference was ‘7 billion voices’, exploring how patient experiences, programs and health literacy can be improved through insights delivered by market researchers in the pharmaceutical industry. ... As part of the keynote speeches,
Clark Health Communications unveils new positioning

often across internal functions. It also expresses feedback that CHC instinctively knows how to build successful collaborations with healthcare professionals, patient advocates, media and other stakeholders as a fundamental part of

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