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patient advocates

This page shows the latest patient advocates news and features for those working in and with pharma, biotech and healthcare.

Shire teams up with Microsoft and EURORDIS for rare disease project

Shire teams up with Microsoft and EURORDIS for rare disease project

Will work to accelerate the time to diagnosis for children. Shire has formed a strategic alliance with Microsoft and the European rare diseases patient group organisation EURORDIS to accelerate the time ... In turn they will bring together a dedicated

Latest news

  • Facing the new wave of biosimilars Facing the new wave of biosimilars

    GAfPA campaigns across Europe to ensure patient access to appropriate clinically approved therapies. ... GAfPA has and continues to work with the European Federation of Crohn’s and Colitis Associations to increase patient awareness about these

  • Snapchat arrives at scientific meetings Snapchat arrives at scientific meetings

    patient advocates of all ages.”.

  • NOR-SWITCH - the final piece in the biosimilar puzzle? NOR-SWITCH - the final piece in the biosimilar puzzle?

    But the Global Alliance for Patient Access (GAfPA) - a network of physicians and patient advocates that campaigns for patient access to appropriate clinical care and approved therapies - believes it is important ... notably in Barcelona in February 2016

  • Orphan drugs: Leading the way in patient-centricity Orphan drugs: Leading the way in patient-centricity

    Orphan drug companies collaborate with patient advocates for example to demonstrate the burden of the disease, add it to the policy agenda and help to incorporate the rare patients' benefit-risk ... Lessons in patient-centricity . Patient engagement is

  • Gilead launches European hep C awareness drive Gilead launches European hep C awareness drive

    Similarly the awareness drive has launched a story archive, encouraging people to submit videos sharing their experiences with HCV, with a number of the campaign's patient advocates already having submitted ... Prominent HCV healthcare professionals and

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Latest Intelligence

  • Beyond caring: learning from the unsung advocates in cancer care

    What can we do for advocates? Increasing patient access to advocates has the potential to fundamentally change the cancer experience for patients and their families. ... However it’s obvious that the patient experience doesn’t stop here. Advocates

  • Optimising market research data in rare diseases Optimising market research data in rare diseases

    They are not simply a proxy for the patient who is too young or too ill; they are also information seekers, advocates and influencers on the disease course and treatment journey, ... can often reflect patient populations that are either similar or even

  • Change drivers: multi-stakeholder education and collaboration Change drivers: multi-stakeholder education and collaboration

    Challenge 2: industry silos and compliance. Over the years, a number of patient advocates and experts that I have worked with on behalf of clients have expressed frustration at the siloed ... patient advocates and clinical experts.

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Latest from PMHub

  • Clark Health Communications unveils new positioning

    It also expresses feedback that CHC instinctively knows how to build successful collaborations with healthcare professionals, patient advocates, media and other stakeholders as a fundamental part of their approach to communications.

  • The Heart of the Matter 6 – to tweet or not to tweet?

    Patient groups and advocates are now powerful online thought leaders in specific disease areas – and are deeply knowledgeable about the science.”. ... Its engagement with patient advocates has understandably been more conservative. But itʼs time for

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Four Health Communications

Formerly known as Packer Forbes Communications, Four Health Communications is an award-winning, integrated healthcare communications agency for pharma, biotech, NGOs...

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