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patient data

This page shows the latest patient data news and features for those working in and with pharma, biotech and healthcare.

EMA accepts application for bluebird bio’s Lenti-D in CALD

EMA accepts application for bluebird bio’s Lenti-D in CALD

Bluebird bio's Lenti-D (eli-cel/elivaldogene autotemcel) is a potential one-time gene therapy designed to add functional copies of the ABCD1 gene into a patient’s own hematopoietic ... MFDs are the six severe disabilities commonly attributed to CALD,

Latest news

  • Key emerging trends in digital health Key emerging trends in digital health

    Enter ‘virtual’ clinical trials, that are lauded not only for patient-centricity but also for providing researchers with a wealth of patient data in real time. ... An integral aspect of a virtual trial is its incorporation of patient-facing

  • IMV preps pivotal trials for ovarian cancer T cell therapy IMV preps pivotal trials for ovarian cancer T cell therapy

    The Canadian biotech revealed data from the 22-patient DeCidE1 study shows that the drug stabilised disease in 79% of 19 evaluable patients with advanced, recurrent ovarian cancer, with more than ... Investors seemed less enthusiastic about the data

  • NICE plans to widen the net for data it uses in guidance NICE plans to widen the net for data it uses in guidance

    NICE – which received 130 comments on its processes from industry, patient groups and clinicians in a review last year – has pledged to “set out the full range of data sources that ... Extending the range of data to include patient records,

  • Another blow for BMS in first-line NSCLC as it pulls EU filing Another blow for BMS in first-line NSCLC as it pulls EU filing

    data”. CheckMate-227 was initially submitted in 2018 in treatment-naïve NSCLC patients with tumour mutational burden (TMB) – a biomarker for disease activity – based on an improvement in progression-free survival ... The CHMP “acknowledged the

  • The digital shift in pharma marketing The digital shift in pharma marketing

    This meant that the pharma industry had to make another set of investments in data collection, collation and interpretation. ... These companies scored poorly on tools’ deployment for social listening, which has a significant bearing on collecting

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Latest Intelligence

  • COVID-19 – a catalyst for technology adoption in clinical trials COVID-19 – a catalyst for technology adoption in clinical trials

    The hope is that the longer-term opportunities that technology offers to improve patient recruitment, clinical trial conduct, data capture and time to market mean that the changes we’re seeing ... For example, uMotif, a company in the AlbionVC

  • Time to tear down the wallpaper? Time to tear down the wallpaper?

    But what about unique products, such as those offering distinct outcomes, special benefits or a patient-centred approach? ... The key to success here is ‘engage’, not ‘like’. Too much market research in pharma ends up tracking doctors’ likes

  • Every superhero has an origin story – what’s yours? Every superhero has an origin story – what’s yours?

    By Blair Hesp. Most communications regarding pharmaceuticals report data as if treating a patient with the mean/median characteristics of a study population represents the day-to-day reality for healthcare ... providers. But every patient presents with a

  • Persuasive technology: designing behaviour change initiatives for digital

    Strategies to support individual knowledge and treatment decisions for better patient outcomes are no longer the reserve of pharma reps and on-site scientific meetings. ... Supporting HCPs’ patient management and treatment decisions, the

  • Encouraging patient participation in real-world studies Encouraging patient participation in real-world studies

    And, as the integrity, quality and timelines of the data collected improves, more and more clinical trials will employ electronic media, such as smartphones and tablets, to collect patient-reported outcomes. ... How can companies encourage patient

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Latest appointments

  • Syneos Health appoints Tim Pantello as president of communications Syneos Health appoints Tim Pantello as president of communications

    Prior to Syneos Health, Pantello was a managing director at PricewaterhouseCoopers (PwC), leading multiple offerings within the Health Industry Advisory Group related to wearable data, patient intelligence and predictive behaviours and

  • Christie Anbar appointed global healthcare lead at Ruder Finn Christie Anbar appointed global healthcare lead at Ruder Finn

    In her new role, Anbar will lead the company’s partnership with clients ranging from major biopharmaceutical companies to emerging biotech, tech and health data pioneers, as well as patient advocacy ... cutting-edge solutions and remaining ahead of

  • Exco InTouch appoints president and COO Exco InTouch appoints president and COO

    Steve Powell will lead the mobile healthcare app and data capture firm. ... He brings 25 years of healthcare technology experience to Exco InTouch, with a focus on operational and technology growth in clinical research organisations and biotechs, as well

  • PatientsLikeMe names Jason Johnson as head of R&D PatientsLikeMe names Jason Johnson as head of R&D

    Johnson will lead the company's research, data science and informatics teams, which focus on analysing and merging patient-reported data and other data types to develop models of disease progression ... Martin Coulter, CEO at PatientsLikeMe, said: “Our

  • Aurora expands team Aurora expands team

    He has a keen interest in the public engagement of science and medicine, specifically translating complex science and data into public and patient-friendly language.

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Latest from PMHub

  • The patient journey: A long and winding road

    In my mind, to an extent the patient journey became reduced to symptom presentation, referrals, diagnostic approaches, and, finally, treatment and prognosis. ... In our work at Porterhouse Insights, we often use real-world data (such as patient case

  • Harness the power of data to map new patient pathways

    Key data that can be gathered includes patient flows and admission rates for covid-19 in different hospitals from the start of the pandemic through to the present time. ... However, it needs a wealth of population-based data to inform its decision-making.

  • What NORD’s RareInsights® 30-year comparative analysis means to us and our clients at OPEN Health What NORD’s RareInsights® 30-year comparative analysis means to us and our clients at OPEN Health

    Better connecting communities of physicians through education and hubs. Leveraging real-world data and patient experience data (e.g. ... It is welcome to see a growing engagement with clinical research amongst the patient community.

  • Infographic

    Migraine market snapshot. Research Partnership’s migraine market snapshot offers an introduction to the real world patient data collected by their Therapy Watch migraine study. ... The snapshot features key patient statistics and a dashboard example.

  • Are patient recruitment and retention rates rising or falling? Are patient recruitment and retention rates rising or falling?

    Amazing, right? And according to CSDD, patient involvement in protocol development, mobile data collection devices and virtual trials all contributed to improved recruitment metrics since 2012. ... It just shows that all the hard work we’re doing as

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90TEN

90TEN is a global healthcare communications consultancy with a mission to make people healthier and happier through life-changing education and...

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