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patient groups

This page shows the latest patient groups news and features for those working in and with pharma, biotech and healthcare.

Vertex scores CF deal with Scotland, but access debate continues

Vertex scores CF deal with Scotland, but access debate continues

Campaigners and patient groups have continually called for access, and a dedicated  buyers’ club has been set up to source the medicines in Argentina, where Vertex does not hold a patent ... The generic, made by Gador, is £23, 000 per patient per year

Latest news

  • NICE approves BioMarin’s Brineura after initial setback NICE approves BioMarin’s Brineura after initial setback

    There is currently no cure or life-extending treatments for CLN2, so the approval is likely to be met with elation from patient groups. ... Despite the disease affecting up to six infants each year (with up to 50 children in the UK living with the

  • Novartis’ CAR-T Kymriah scores SMC approval Novartis’ CAR-T Kymriah scores SMC approval

    The process involves a meeting with patient groups and clinicians – the PACE meeting for Kymriah highlighted the poor prognosis of patients with this condition and the current limited treatment options. ... From the testimonies given by patient groups

  • Novo follows Sanofi, Lilly with insulin price cut in US Novo follows Sanofi, Lilly with insulin price cut in US

    Patient groups have complained of difficulties getting hold of Lilly’s authorised generic however, and have  accused the company of carrying out a public relations stunt by trumpeting a cheaper product ... What a patient pays for medicine is

  • Who's calling the shots in European healthcare? Who's calling the shots in European healthcare?

    Natsis is policy manager for Universal Access and Affordable Medicines at the European Public Health Alliance (EPHA), a Brussels-based organisation made up of public health NGOs, patient groups, health professionals ... Improve patient access. Build a

  • Charity launches real-world medical cannabis study Charity launches real-world medical cannabis study

    Drug Science – headed by the former Chair of the Advisory Council on the Misuse of Drugs Prof David Nutt – has set up a partnership between patient groups and medical cannabis companies ... The patient registry approach also sidesteps the current

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Latest Intelligence

  • How can we realise the benefits of patient engagement? How can we realise the benefits of patient engagement?

    2018 – the Patient Perspective’, just 36% of patient groups globally said pharma was either excellent or good in its partnerships. ... Guided by values. This doesn’t mean that every patient interaction should be treated as a partnership.

  • A new era in European Parliament: policymakers need to hear from pharma A new era in European Parliament: policymakers need to hear from pharma

    The two centrist political groups lost their majority for the first time in forty years, while the nationalist right and the green left both gained ground. ... policymakers with expert scientists, healthcare professionals or patient groups.

  • What pharma marketers can learn from Disney

    Channels such as YouTube, while immensely popular among both HCPs and patients, are considered off-limits by many companies, while patient advocacy groups capitalise on them for disease awareness.

  • Women Leaders in UK Healthcare: Liz Henderson Women Leaders in UK Healthcare: Liz Henderson

    It’s an exciting industry to work in – I love seeing how science is translated into patient benefit and it is so rewarding to work with inspirational people who can turn ... environment. We are also working with a number of patient groups across the

  • Rare disease trials Q&A Rare disease trials Q&A

    and the clinical characteristics of the patient population selected for the clinical trial. ... Partnerships with patient organisations, advocacy groups, patient registries and clinician education to increase disease awareness, minimise time to diagnosis

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Latest appointments

  • Weekly industry appointments Weekly industry appointments

    Leider’s new role as chief medical officer will see him take responsibility for leading Gelesis’ overall medical strategy, including overseeing medical affairs functions and programming with medical associations, patient advocacy ... groups and other

  • Red Door Unlimited appoints senior consultants Red Door Unlimited appoints senior consultants

    While at Aurora, she led the delivery of a one-day digital and social media training day for patient groups, which won a Communiqué award in 2013.

  • MHP Health strengthens team with four hires MHP Health strengthens team with four hires

    She joins MHP from Red Door where she spent over six years and prior to that, Ketchum, where she provided specialist PR advice to leading global pharmaceutical companies and patient groups.  .

  • Former Vodafone UK comms head joins ABPI Former Vodafone UK comms head joins ABPI

    In her new role at the ABPI she will be responsible for the organisation's engagement with all external stakeholders, including government, NHS, media, patient groups and the wider healthcare community.

  • ABPI names NHS partnership manager ABPI names NHS partnership manager

    Tugnet said of his new responsibilities: “Driving improved productivity through organisational and functional change in order to deliver greater patient value and health outcomes is a top priority for the NHS, ... I am extremely excited in the

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