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patient groups

This page shows the latest patient groups news and features for those working in and with pharma, biotech and healthcare.

NICE U-turn on Crystiva for rare bone disease

NICE U-turn on Crystiva for rare bone disease

This marks a step change in treatment for XLH, emphasised through the emotional testimonies provided by patient groups and clinicians following the first evaluation consultation.”.

Latest news

  • ICER says Alnylam’s Onpattro should cost 90%-95% less ICER says Alnylam’s Onpattro should cost 90%-95% less

    Nevertheless, Alnylam’s price for Onpattro of $450, 000 per patient per year “even taking into account expected discounts, far exceeds commonly cited cost-effectiveness thresholds, ”according to ICER’s chief ... We heard from patients, patient

  • Shock as NICE turns down Biogen’s SMA therapy Shock as NICE turns down Biogen’s SMA therapy

    NICE says that Biogen has indicated it will develop a proposal for a managed access programme for nusinersen along with patient groups and other stakeholders that will “reduce the financial risk

  • Healthcare Comms news Healthcare Comms news

    The new office will be offering health science writing services to pharmaceutical companies and patient groups in Australia.

  • Collaborate to survive Collaborate to survive

    Collaborate to survive. The pharma and life sciences industries are being buffeted by major shifts in technology, data, funding, demographics and patient expectations – all happening at the same time. ... They need structure and a well-facilitated

  • ABPI’s Aileen Thompson is crowned Healthcare Communiquétor 2018 ABPI’s Aileen Thompson is crowned Healthcare Communiquétor 2018

    Thompson advises the ABPI’s board of management and senior leadership team on all communications and engagement operations, and heads up a team responsible for engaging with government, media, patient groups

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Latest Intelligence

  • The critical role of science in healthcare communications The critical role of science in healthcare communications

    Add to this, today’s empowered patient, who has more access to health information, and misinformation, from both valid and questionable Internet sources. ... Going forward, in addition to using our knowledge and expertise to bring added value to our

  • Trust me, I’m from pharma Trust me, I’m from pharma

    Patient advocacy groups have become very influential. However, their perception of pharma is arguably not favourable. ... Shifting this perception is vital. “There’s a great willingness among pharma companies to engage with patient advocacy groups,

  • The Patient Journey

    When developing a patient journey it’s imperative to understand a variety of perspectives. ... And it’s important not to forget patient associations – accessing and working in collaboration with patient groups can help engage patients willing to

  • GDPR and the NHS ‘opt out’: a chance to engage patients in research GDPR and the NHS ‘opt out’: a chance to engage patients in research

    Consequently, patient advocacy groups, such as UseMYData, are now championing the appropriate use of patient data for research. ... In other words, informed consent underpins not only patient centricity but the future of research.

  • Rules of engagement Rules of engagement

    Get the raw feedback from the patient groups, physician groups, etc to see how you are fairing and adjust accordingly based on the feedback. ... for these groups - only then can you make the strategic choices around channels and branding.

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Approximately 2 fully matching, plus 80 partially matching documents found.

Latest appointments

  • Weekly industry appointments Weekly industry appointments

    Leider’s new role as chief medical officer will see him take responsibility for leading Gelesis’overall medical strategy, including overseeing medical affairs functions and programming with medical associations, patient advocacy ... groups and other

  • Red Door Unlimited appoints senior consultants Red Door Unlimited appoints senior consultants

    While at Aurora, she led the delivery of a one-day digital and social media training day for patient groups, which won a Communiqué award in 2013.

  • MHP Health strengthens team with four hires MHP Health strengthens team with four hires

    She joins MHP from Red Door where she spent over six years and prior to that, Ketchum, where she provided specialist PR advice to leading global pharmaceutical companies and patient groups.

  • Former Vodafone UK comms head joins ABPI Former Vodafone UK comms head joins ABPI

    In her new role at the ABPI she will be responsible for the organisation's engagement with all external stakeholders, including government, NHS, media, patient groups and the wider healthcare community.

  • ABPI names NHS partnership manager ABPI names NHS partnership manager

    Tugnet said of his new responsibilities: “ Driving improved productivity through organisational and functional change in order to deliver greater patient value and health outcomes is a top priority for the NHS, ... I am extremely excited in the

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More from PMHub
Approximately 2 fully matching, plus 12 partially matching documents found.

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