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patient groups

This page shows the latest patient groups news and features for those working in and with pharma, biotech and healthcare.

Novartis faces criticism over Zolgensma ‘health lottery’

Novartis faces criticism over Zolgensma ‘health lottery’

SMA Europe deems access programme 'inappropriate'. Novartis has responded to criticism over its managed access programme for spinal muscular atrophy (SMA) gene therapy Zolgensma, with patient groups accusing the company of ... The plan has been heavily

Latest news

  • NICE plans to widen the net for data it uses in guidance NICE plans to widen the net for data it uses in guidance

    NICE – which received 130 comments on its processes from industry, patient groups and clinicians in a review last year – has pledged to “set out the full range of data sources that ... Extending the range of data to include patient records,

  • QiC Dermatology is now open for entry QiC Dermatology is now open for entry

    QiC Programmes are run by PMGroup and were first launched in 2011 to bring the NHS, industry and patient groups closer together to increase joint working, with the goal of recognising ... The programmes recognise, reward and share good practice in

  • Communiqué Awards 2020 is now open for entry Communiqué Awards 2020 is now open for entry

    Last year we brought on 19 new judges with a particular emphasis on in-house, medical and patient groups, joining our existing panel of 100 judges. ... Charity, Patient or Professional Association of the Year. Young Achiever in Healthcare Communications.

  • Lilly extends range of cut-price insulins in the US Lilly extends range of cut-price insulins in the US

    Patient groups have also complained of difficulties getting hold of Lilly’s first authorised generic Humalog however, and have  accused  the company of carrying out a public relations stunt by trumpeting

  • Biogen scores mid-stage trial win for lupus drug BIIB059 Biogen scores mid-stage trial win for lupus drug BIIB059

    Biogen says that in the LILAC trial, BIIB059 – a monoclonal antibody targeting blood dendritic cell antigen 2 (BDCA2) – was compared to placebo in two patient groups who had either CLE or

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Latest Intelligence

  • Keeping up the fight against HIV and using the lessons to tackle other threats Keeping up the fight against HIV and using the lessons to tackle other threats

    The strategy echoes its HIV heritage and continuing practice of working closely with patient groups in all aspects of drug development. ... You could call that a business benefit but I call it a patient benefit because working in isolation derives.

  • A snapshot of Healx A snapshot of Healx

    Healx’s unique combination of cutting-edge AI technology, drug discovery team expertise and focus on collaboration with patient groups is what really sets us up for success in this competitive ... Our recent Series B funding will be used to develop our

  • The Golden Goose The Golden Goose

    The idea that a fully insured patient might be denied immediate, gold-standard, top-shelf treatment, no matter what the cost, is anathema to Americans. ... Yet another market-friendly idea that enjoys broad support among patient advocacy groups is

  • Understanding the patient journey Understanding the patient journey

    You can also share insights with patient advocacy groups to help inform their campaigns or communications, thus strengthening relationships with this key section of the patient community. ... Alex Morton is a Patient Communications Specialist at Nucleus

  • How can we realise the benefits of patient engagement? How can we realise the benefits of patient engagement?

    2018 – the Patient Perspective’, just 36% of patient groups globally said pharma was either excellent or good in its partnerships. ... Guided by values. This doesn’t mean that every patient interaction should be treated as a partnership.

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Latest appointments

  • Weekly industry appointments Weekly industry appointments

    Leider’s new role as chief medical officer will see him take responsibility for leading Gelesis’ overall medical strategy, including overseeing medical affairs functions and programming with medical associations, patient advocacy ... groups and other

  • Red Door Unlimited appoints senior consultants Red Door Unlimited appoints senior consultants

    While at Aurora, she led the delivery of a one-day digital and social media training day for patient groups, which won a Communiqué award in 2013.

  • MHP Health strengthens team with four hires MHP Health strengthens team with four hires

    She joins MHP from Red Door where she spent over six years and prior to that, Ketchum, where she provided specialist PR advice to leading global pharmaceutical companies and patient groups.  .

  • Former Vodafone UK comms head joins ABPI Former Vodafone UK comms head joins ABPI

    In her new role at the ABPI she will be responsible for the organisation's engagement with all external stakeholders, including government, NHS, media, patient groups and the wider healthcare community.

  • ABPI names NHS partnership manager ABPI names NHS partnership manager

    Tugnet said of his new responsibilities: “Driving improved productivity through organisational and functional change in order to deliver greater patient value and health outcomes is a top priority for the NHS, ... I am extremely excited in the

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