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Patient Stories

This page shows the latest Patient Stories news and features for those working in and with pharma, biotech and healthcare.

bluebird bio marks Rare Disease Day 2021 with launch of patient testimonial video

bluebird bio marks Rare Disease Day 2021 with launch of patient testimonial video

video, ‘ Living with Thalassaemia in Europe: Stories from patients of different ages’, together with national patient group representatives and quotes from leading clinicians. ... These are placed into focus by the six patient testimonies that

Latest news

  • World Castleman Disease Day World Castleman Disease Day

    It makes me very hopeful, getting to know other patient's stories at various stages of Castleman diagnosis and treatment, and following the progress of the world’s medical researchers and ... patient community and other organisations to better

  • NHS marks its Twitter debut with story-sharing initiative NHS marks its Twitter debut with story-sharing initiative

    Three-month project will see a patient or staff member take over the new account. ... NHS Twitter curator Richard Orchard  . The NHS has launched its first Twitter account with an initiative to shine a light on the patient and staff stories behind the

  • International AIDS Society rebrands with focus on patient stories International AIDS Society rebrands with focus on patient stories

    The new brand outlook brings people to the forefront of the IAS' narrative, giving the everyday stories of people living with and working to combat the disease a platform.

  • Daiichi Sankyo collaborates on e-patient AF resource Daiichi Sankyo collaborates on e-patient AF resource

    Specifically it will offer an online community that allows users to pose questions to fellow members and a qualified doctor; a magazine with treatments, prevention and research articles, plus patient stories;

  • Telling tales Telling tales

    Here I'll refer to patient stories, but the principles apply across the board. ... This isn't as hard as it sounds - at the heart of most patient stories lie experiences of fear, anxiety, confusion, frustration, joy, relief and love, and most people can

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Latest from PMHub

  • Porphyria Awareness Week – Round Up

    We shared a series of patient and caregiver stories to help people understand what it’s like living with the disease, the journey to diagnosis and the experiences of carers. .

  • Rediscovering the human touch in healthcare

    This can lead to a positive impact on both the patient’s experience and the HCP’s mental wellbeing. ... By harnessing the power of imaginative communication to build a narrative around patient stories, we can inspire our HCPs into action and help our

  • Sharing patient stories for World Pulmonary Hypertension Day Sharing patient stories for World Pulmonary Hypertension Day

    Sharing patient-led stories is powerful, not only for raising awareness of PH, but also in supporting other sufferers and highlighting that they’re not alone. ... help. The result was these three video stories, representing anger, fear and panic - the

  • Mobile Innovation

    How to take real patient stories to create compelling narratives.

  • Spotlight interview: 15 minutes on insights and market research in pharma

    step further and start thinking about design and deliverables of tailored patient engagement solutions. ... Hearing those patient stories moves the patient journey mapping process from the hypothetical to something real.

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