Please login to the form below

Not currently logged in
Email:
Password:

Rare Disease Day

This page shows the latest Rare Disease Day news and features for those working in and with pharma, biotech and healthcare.

Daily Brief: GDPR and NHS Opt Out Day, BioMarin's new rare disease approval and more

Daily Brief: GDPR and NHS Opt Out Day, BioMarin's new rare disease approval and more

It's not just the GDPR's big day, plus news from Medigene and Pfizer. ... records. NEW RARE DISEASE APPROVAL. BioMarin sees blockbuster potential for newly-approved Palynziq.

Latest news

  • emotive partners with Rare Disease UK for public awareness campaign emotive partners with Rare Disease UK for public awareness campaign

    Will launch the campaign ahead of next month's Rare Disease Day. ... Healthcare communications agency emotive has teamed up with Rare Disease UK to develop a public awareness campaign, which will be launched ahead of Rare Disease Day on 28 February.

  • Jinarc backed for European approval in rare kidney disease Jinarc backed for European approval in rare kidney disease

    Positive opinion for Otsuka comes just before rare disease awareness day.  . ... The decision to recommend the drug for a European licence comes auspiciously before tomorrow's Rare Disease Day, an annual event that looks to raise awareness about

  • Genzyme backs first International Pompe Day Genzyme backs first International Pompe Day

    Raises awareness of rare neuromuscular disease. Sanofi-owned Genzyme was one of the supporters of the inaugural awareness day for the neuromuscular disease. ... We are pleased that the Pompe community is coming together to raise international

  • Pharma companies back Rare Disease Day Pharma companies back Rare Disease Day

    UK staff, in addition to taking part in the torch relay, will submit articles to the national Rare Disease Day supplement. ... Other life sciences companies to support Rare Disease Day include Isis Pharmaceuticals, NPS Pharmaceuticals, Quintiles and Shire

  • Novartis provides multimedia support to Rare Diseases Day Novartis provides multimedia support to Rare Diseases Day

    Collaborates with Eurordis on multimedia education campaign. Novartis has collaborated with rare diseases organisation Eurordis to help raise public awareness of rare disease. ... Rare Disease Day was set up in 2008 by Eurordis, a non-governmental

More from news
Approximately 2 fully matching, plus 7 partially matching documents found.

Latest from PMHub

  • Synergy Vision

    In light of today (18th November 2015) being World COPD Day, it’s never too late to raise further awareness on this disease. ... June 2017 is Alzheimer’s and Brain Awareness Month, which aims to raise awareness about Alzheimer’s disease (AD) and

  • Rare Disease Day 2018: Five things you should know about rare diseases.

    To help raise awareness for Rare Disease Day, Porterhouse Medical describes five interesting facts about rare diseases. ... The Rare Disease Day campaign aims to combat these issues by raising awareness among the public, healthcare professionals,

  • Addressing the biggest challenges for rare disease communities

    Each year, Rare Disease Day takes place worldwide on the last day in February. ... Rare Disease Day raises awareness and encourages the healthcare industry and decision-makers to understand the needs of those living with rare diseases. .

  • Finding the familiar in Rare Disease

    Inspired by World Rare Disease Day, WE Communication's Hugh Adams covers some of the challenges faced when considering Rare Disease communications. ... When considering rare disease in particular diagnosis is frequently a long drawn-out process.

  • Raising Awareness: Rare Disease Day

    Initiatives such as Rare Disease Day aim to raise awareness of these unusual disorders. ... Want to find out more? Visit the Rare Disease Day website at: www.rarediseaseday.org. .

More from PMHub
Approximately 3 fully matching, plus 6 partially matching documents found.

Featured jobs

Subscribe to our email news alerts

PMHub

Add my company
An agency called Owen

We’re a Healthcare Communications Agency specialising in Multi-channel Marketing to make you Digitally Fitter, Stronger & Faster....

Latest intelligence

NHS regional footprints
What to expect from 2019...
Not another weight-loss ad
Christmas is over and the gyms are packed, it’s a never-ending tale. But why do we do it to ourselves every year?...
China’s clinical trial shake-up
As many of the obstacles to running clinical trials in China fall away, the country is proving to be a better research location...

Infographics