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Rare Disease Day

This page shows the latest Rare Disease Day news and features for those working in and with pharma, biotech and healthcare.

UK launches National Genomic Healthcare strategy

UK launches National Genomic Healthcare strategy

New initiative unveiled to coincide with Rare Disease Day. The UK government has announced plans to further its goal of becoming a world-leader in bringing genomics into everyday healthcare. ... The new initiative is taking another step forward to

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  • Rare Diseases Day Rare Diseases Day

    On Rare Disease Day in 2019 it is surprising to note that few rare diseases have benefited from the digitisation of condition management and disease information in the same way as ... Yet, there is no cure for the majority of rare diseases and many go

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  • emotive supports Rare Disease Day 2019

    With a series of events and activities over the week leading up to Rare Disease Day on February 28th, we showed our support for stimulating greater awareness of Rare Diseases along ... In line with the Rare Disease Day theme, we took photos of our team

  • Rare Disease Day 2019

    Today is #RareDiseaseDay and is an opportunity to highlight some truly unbelievable/frightening statistics around rare diseases. ... Did you know, for example, that over 3.5 million people in the UK suffer from a rare disease or that 95% of rare diseases

  • Rare Disease Day 2019: A patient perspective on primary sclerosing cholangitis

    To find out more information about Rare Disease Day, visit ... References. Rare Disease Day. Watch new patient videos for Rare Disease Day 2019.

  • Synergy Vision

    In light of today (18th November 2015) being World COPD Day, it’s never too late to raise further awareness on this disease. ... June 2017 is Alzheimer’s and Brain Awareness Month, which aims to raise awareness about Alzheimer’s disease (AD) and

  • Rare Disease Day 2018: Five things you should know about rare diseases.

    To help raise awareness for Rare Disease Day, Porterhouse Medical describes five interesting facts about rare diseases. ... The Rare Disease Day campaign aims to combat these issues by raising awareness among the public, healthcare professionals,

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Makara Health

Independent healthcare communications agency with a passion to develop inspirational ideas that create sustained and positive change. Whether it is...

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Webinar: Usability and UX: You’ve been asked to test...What next?
Thursday 27th June 2019 10am EDT / 3pm BST / 4pm CEST...
Event: EphMRA Annual Conference
We're sponsoring, exhibiting and presenting three papers at this year’s EphMRA Annual Conference in Warsaw, Poland....
Research Partnership and Janssen awarded runner-up in MR Excellence Awards