Please login to the form below

Not currently logged in
Email:
Password:

Rare Disease Day

This page shows the latest Rare Disease Day news and features for those working in and with pharma, biotech and healthcare.

bluebird bio marks Rare Disease Day 2021 with launch of patient testimonial video

bluebird bio marks Rare Disease Day 2021 with launch of patient testimonial video

Panos Englezos, President of the Thalassaemia International Federation, Cyprus. To mark Rare Disease Day 2021, gene therapy company bluebird bio has joined forces with a number of leading patient organisations and ... I hope with all my heart that one

Latest news

More from news
Approximately 6 fully matching, plus 8 partially matching documents found.

Latest Intelligence

  • Case-study for thalassaemia: Dimitri Azzopardi Case-study for thalassaemia: Dimitri Azzopardi

    An in-depth look at beta thalassaemia for Rare Disease Day. Beta thalassaemia major is a serious, lifelong genetic blood disorder. ... You can find information about Rare Disease Day here and here, or via the Twitter activity.

  • Rare Diseases Day Rare Diseases Day

    On Rare Disease Day in 2019 it is surprising to note that few rare diseases have benefited from the digitisation of condition management and disease information in the same way as ... Yet, there is no cure for the majority of rare diseases and many go

More from intelligence
Approximately 0 fully matching, plus 2 partially matching documents found.

Latest from PMHub

  • emotive supports Rare Disease Day 2019

    With a series of events and activities over the week leading up to Rare Disease Day on February 28th, we showed our support for stimulating greater awareness of Rare Diseases along ... In line with the Rare Disease Day theme, we took photos of our team

  • Rare Disease Day in a COVID-19 environment

    For many people and families living with a rare disease, their journey can be very complex. ... Another vital stakeholder in the rare disease community are the specialist charities providing tailored disease-specific guidance and support, for children

  • Why we need to look at rare diseases in a different way Why we need to look at rare diseases in a different way

    28 February 2021, Rare Disease Day aims to raise awareness of rare diseases and the impact they have on patients’ lives. ... Critically, although we define individual rare diseases as rare, collectively there are around 7, 000 which means that 1 in 17

  • Why we need to look at rare diseases in a different way

    28 February 2021, Rare Disease Day aims to raise awareness of rare diseases and the impact they have on patients’ lives. ... Critically, although we define individual rare diseases as rare, collectively there are around 7, 000 which means that 1 in 17

  • Rare Disease Day – why it’s important to show your stripes Rare Disease Day – why it’s important to show your stripes

    Rare Disease Day () on 28 February is intended to raise awareness among policymakers and the public about rare diseases and their impact on the lives of patients and their families. ... using the hashtag ‘Show Your Stripes’ to promote Rare Disease

More from PMHub
Approximately 6 fully matching, plus 15 partially matching documents found.

PMEA Awards 2020

COVID-19 Updates and Daily News

Featured jobs

PMHub

Add my company
Spirit

We find the soul in the science, the humanity in the data, harnessing the power of creativity to deliver medical...

Latest intelligence

#DemandDiversity: For International Women's Day, we ask... why do women often suffer from more side effects than men?
Women are largely prescribed exactly the same treatment regimens as men, with no account for the underlying differences in physiology and drug metabolism between the sexes....
Good design saves lives
Good design and creative thinking are essential if we are to improve on existing problems in new ways, which is why design and creativity within healthcare is vital. Health is...
Why you must understand the pricing of patient recruitment companies
Recruiting a diverse range of patients and engaging with them for your clinical trial isn’t an easy task, which means you might turn to patient recruitment companies, like us, who...

Infographics