Please login to the form below

Not currently logged in
Email:
Password:

Rare Disease Day

This page shows the latest Rare Disease Day news and features for those working in and with pharma, biotech and healthcare.

No patient left behind

No patient left behind

How healthcare comms helps create rare disease communities. Natalie Lanyon. We’re told from a young age that individuality is to be celebrated; it’s good to stand out from the ... The patient’s perspective. With rare diseases, the patient often

Latest news

More from news
Approximately 4 fully matching, plus 8 partially matching documents found.

Latest Intelligence

  • Case-study for thalassaemia: Dimitri Azzopardi Case-study for thalassaemia: Dimitri Azzopardi

    An in-depth look at beta thalassaemia for Rare Disease Day. Beta thalassaemia major is a serious, lifelong genetic blood disorder. ... You can find information about Rare Disease Day here and here, or via the Twitter activity.

  • Rare Diseases Day Rare Diseases Day

    On Rare Disease Day in 2019 it is surprising to note that few rare diseases have benefited from the digitisation of condition management and disease information in the same way as ... Yet, there is no cure for the majority of rare diseases and many go

More from intelligence
Approximately 0 fully matching, plus 2 partially matching documents found.

Latest from PMHub

More from PMHub
Approximately 4 fully matching, plus 7 partially matching documents found.

COVID-19 Updates and Daily News

Featured jobs

PMHub

Add my company
90TEN

90TEN is a global healthcare communications consultancy with a mission to make people healthier and happier through life-changing education and...

Latest intelligence

Kulveer Singh
Surviving cancer: a new era for patients
Now more than ever, a shift in perspective is needed...
Crisis? No problem!
Issues planning & management for pharma spokespeople, by Andrew Smith...
Are patient recruitment and retention rates rising or falling?
First up, the good news. Over the past seven years, clinical trial recruitment rates have been on the rise....

Infographics