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Rare Disease Day

This page shows the latest Rare Disease Day news and features for those working in and with pharma, biotech and healthcare.

Daily Brief: GDPR and NHS Opt Out Day, BioMarin's new rare disease approval and more

Daily Brief: GDPR and NHS Opt Out Day, BioMarin's new rare disease approval and more

Daily Brief: GDPR and NHS Opt Out Day, BioMarin's new rare disease approval and more. ... records. NEW RARE DISEASE APPROVAL. BioMarin sees blockbuster potential for newly-approved Palynziq.

Latest news

  • emotive partners with Rare Disease UK for public awareness campaign emotive partners with Rare Disease UK for public awareness campaign

    emotive partners with Rare Disease UK for public awareness campaign. Will launch the campaign ahead of next month's Rare Disease Day. ... Healthcare communications agency emotive has teamed up with Rare Disease UK to develop a public awareness campaign,

  • Jinarc backed for European approval in rare kidney disease Jinarc backed for European approval in rare kidney disease

    Jinarc backed for European approval in rare kidney disease. Positive opinion for Otsuka comes just before rare disease awareness day. ... The decision to recommend the drug for a European licence comes auspiciously before tomorrow's Rare Disease Day, an

  • Genzyme backs first International Pompe Day Genzyme backs first International Pompe Day

    Genzyme backs first International Pompe Day. Raises awareness of rare neuromuscular disease. ... We are pleased that the Pompe community is coming together to raise international understanding and awareness of this rare disease.”. “

  • Pharma companies back Rare Disease Day Pharma companies back Rare Disease Day

    Pharma companies back Rare Disease Day. Genzyme, Shire and more hold global campaigns today. ... Other life sciences companies to support Rare Disease Day include Isis Pharmaceuticals, NPS Pharmaceuticals, Quintiles and Shire.

  • Novartis provides multimedia support to Rare Diseases Day Novartis provides multimedia support to Rare Diseases Day

    Novartis has collaborated with rare diseases organisation Eurordis to help raise public awareness of rare disease. ... Rare Disease Day was set up in 2008 by Eurordis, a non-governmental alliance of patient organisations, and co-funded by the Health

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Approximately 2 fully matching, plus 9 partially matching documents found.

Latest from PMHub

  • Raising Awareness: Rare Disease Day

    Raising Awareness: Rare Disease Day. Rare Disease Day takes place on 28 February every year.1 Its aim is to raise awareness of rare diseases, and most importantly, the impact they ... Initiatives such as Rare Disease Day aim to raise awareness of these

  • Rare Disease Day 2018: Five things you should know about rare diseases.

    To help raise awareness for Rare Disease Day, Porterhouse Medical describes five interesting facts about rare diseases. ... The Rare Disease Day campaign aims to combat these issues by raising awareness among the public, healthcare professionals,

  • Should We Care About Rare Diseases? By Alastair Kent

    to care about rare disease and why we should show our support on the Rare Disease Day: 29th February 2016. ... Rare Disease Day – the 29th February, itself a rare day, is here once more, and again patients and families will be coming together with

  • Finding the familiar in Rare Disease

    Finding the familiar in Rare Disease. Inspired by World Rare Disease Day, WE Communication's Hugh Adams covers some of the challenges faced when considering Rare Disease communications. ... When considering rare disease in particular diagnosis is

  • Porterhouse Medical Group

    Rare Disease Day 2018: Five things you should know about rare diseases.. ... To help raise awareness for Rare Disease Day, Porterhouse Medical describes five interesting facts about rare diseases.

More from PMHub
Approximately 3 fully matching, plus 2 partially matching documents found.

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