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Rare Disease Day 2020

This page shows the latest Rare Disease Day 2020 news and features for those working in and with pharma, biotech and healthcare.

UK introduces Rare Diseases Framework to improve the lives of people with rare diseases

UK introduces Rare Diseases Framework to improve the lives of people with rare diseases

bluebird bio releases a video to raise awareness – Rare Disease Day 2021 is on 28 February. ... Rare Disease Day was first celebrated in 2008 on 29 February, as it is a ‘rare’ date that happens only every four years.

Latest news

  • No patient left behind No patient left behind

    How healthcare comms helps create rare disease communities. Natalie Lanyon. We’re told from a young age that individuality is to be celebrated; it’s good to stand out from the ... The patient’s perspective. With rare diseases, the patient often

  • Raising awareness and encouraging support on Rare Disease Day 2020 Raising awareness and encouraging support on Rare Disease Day 2020

    Rare Disease Day aims to raise awareness about the impact of rare diseases among the general public and decision-makers alike. ... The winner of the People’s Choice Award will be announced on Saturday 29 February to coincide with Rare Disease Day.

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PMEA Awards 2020

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Healthcare communications with unique thinking, insight and attitude...

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InSite Events™ National Pharma Meeting: A Customer Story
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The disproportionate effects of the pandemic have been highlighted amongst ethnic minorities, so is it likely that ethnic minorities will be more worried about participating? And could this exacerbate inequalities...

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