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rare diseases

This page shows the latest rare diseases news and features for those working in and with pharma, biotech and healthcare.

Fishawack acquires Dudnyk

Fishawack acquires Dudnyk

Agency to boost abilities in rare diseases and oncology. Fishawack has given its rare diseases and oncology capabilities a boost after it announced it will acquire US-based healthcare communications agency ... Dudnyk brings to Fishawack a particular

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Latest Intelligence

  • From lay summaries to patient engagement programmes: how patient-centricity is finally becoming a reality From lay summaries to patient engagement programmes: how patient-centricity is finally becoming a reality

    We are starting to learn. more about how some patient communities may be particularly well informed about their disease area and ongoing topics of research, for example those with rare diseases.

  • #OrkambiNow? #OrkambiNow?

    The STA system doesn’t account for the rarity of a disease in the same way NICE’s Highly Specialised Technology (HST) appraisal for ultra- rare diseases can. ... For people with CF and these rare conditions, this vision of a less adversarial and more

  • Genomics integration: can the NHS rise to the challenge? Genomics integration: can the NHS rise to the challenge?

    Most of these variants are harmless, but some could unlock the answer to diagnosing, and subsequently treating, those with rare diseases and cancer. ... Data in rare diseases is incredibly powerful.”. Sandi Deans, Consultant Clinical Scientist,

  • Rare Diseases Day Rare Diseases Day

    More than other conditions, rare diseases require a human touch, but technology can provide a vital helping hand. ... By definition, rare diseases affect one in every 2, 000 people or fewer.

  • The importance of co-creation with patients The importance of co-creation with patients

    Sometimes it may be a lack of access to patients that presents the barrier, particularly for rare diseases, where the number of patients who have the condition and are able to ... In many cases, again particularly with rare diseases, the patients

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Latest appointments

  • New faces at imc, GCI Health and Lighthouse US New faces at imc, GCI Health and Lighthouse US

    Additionally, she has also served as a member of the board of management of the ABPI, where she championed access and funding for patients with rare diseases.

  • New faces at Lucid, 90Ten and Page & Page New faces at Lucid, 90Ten and Page & Page

    At Synergy, Bates was project director, working in rare diseases. She was also a publisher at Wounds UK and Wounds international, heading up the medical education division. ... Elaine Downey joins Vivid – Lucid’s rare and specialist diseases agency

  • Weekly industry appointments Weekly industry appointments

    Appleby, who will succeed CGT Catapult’s first CSO Johan Hyllner, currently serves as chief scientific officer for cell and gene therapy at GlaxoSmithKline’s (GSK) rare diseases unit.

  • Paris biocluster appoints Stéphane Roques as new chief Paris biocluster appoints Stéphane Roques as new chief

    He has also chaired the start-up Genosafe and launched the Institute of Biotherapies for Rare Diseases. ... He also chaired the start-up Genosafe and launched the Institute of Biotherapies for Rare Diseases.

  • Gamida Cell strengthens leadership team Gamida Cell strengthens leadership team

    Their combined experience in corporate strategy, business development and commercialisation will be invaluable to the company’s continued growth as we advance our clinical programmes in blood cancers and rare genetic ... diseases.”.

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M&F Health

M&F Health is a full service communications agency, dedicated to the health and wellbeing sector. We are an independent amongst...

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From lay summaries to patient engagement programmes: how patient-centricity is finally becoming a reality
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Four years after being awarded Gold for their continuous professional development (CPD) Cuttsy+Cuttsy (C+C) have reached another milestone and been awarded Platinum accreditation....
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