Please login to the form below

Not currently logged in

Excellence in Communications – Payers/Policymakers

Sponsored by

Back to results

Highly Commended

Rare Disease UK: A UK Strategy for Rare Diseases

by Genetic Alliance UK

Summary of work

Genetic Alliance UK campaigned to secure a UK Strategy for Rare Diseases because the 3.5 million people living with a rare disease in the UK need health services that deliver better health outcomes. With over 6,000 different rare diseases a UK-wide Strategy for Rare Diseases was needed. 

Through its campaign group Rare Disease UK (RDUK), the charity led a tenacious programme of public affairs and policy activities to increase awareness, share knowledge and secure political interest for rare diseases. Building a strong rare disease community of clinicians, industry, patients, patient groups and researchers, RDUK generated a comprehensive and compelling vision for a UK Rare Diseases Strategy. 

RDUK shared this vision by delivering a series of 19 parliamentary events, innovative workshops, briefings, webinars and social media communications. RDUK worked alongside officials in all four UK governments to support and enable them to work together. In November 2013 the Strategy was published, signed by all four UK Health Ministers and with a commitment to monitor and implement it across the devolved nations. 

Genetic Alliance UK continues to lead on ensuring the Strategy is realised and will make a difference in improving the lives and health outcomes of people living with rare diseases.

Judges comments

This campaign had some highly impressive achievements, at a time when everything would seem to have been working against them. To have engagement and traction with 250 patient groups and all four jurisdictions of the NHS is an indication that they've got it right and are doing all the right things. 2013 saw the culmination of outstanding work over a number of years. They thoroughly deserve this high commendation.


Securing opt-out hepatitis C testing in all prisons in England - by The Hepatitis C Trust with Principle Consulting

Highly commended


View the Communiqué Awards 2014 Photos

Category Sponsors

Debbie Tuesley - Communiqué Awards Director

Key dates

Entry deadline 11 March 2022
Extended entry deadline 18 March 2022
(additional fee applies)
Judging days May 2022
Awards Ceremony 7th July 2022

Contact information:

For sponsorship opportunities:
Sales Team
Tel: +44 (0)1372 414200

General event enquiries:
Debbie Tuesley
Tel: +44 (0)1372 414243

Entry and dinner booking enquiries:
Saoirse Meenaghan
Tel: 01372 414253