Finalist
IBD Registry Roadshow 2017
Summary of work
The Inflammatory Bowel Disease (IBD) Registry was set up to find out more about the long-term impact of the condition, and collect better information on treatments and outcomes.
By gathering data electronically, the Registry provides information that IBD teams can use locally to monitor, support and develop patient care, while also feeding into a national database for benchmarking, quality improvement and research.
In early 2017 however, only a fraction of sites were actively entering data and it became clear that busy clinical teams needed more support and information to help them get fully involved, and reap the benefits of better local data.
The roadshow focused on understanding and tackling local barriers, with workshops designed to help teams find solutions and plan next steps. We created a Registry ’adoption ladder’ so teams could easily see where they were in the process compared to their peers, and challenged delegates to set their own data entry target and add it to a map.
Evaluation forms showed delegates greatly valued this interactive approach, and by the end of 2017 the number of sites entering data had more than doubled.
Judges’ comments
The IBD Registry Roadshow demonstrated that real life clinical experience is critical. It had a strong strategy with high values/outcomes. It is an innovative approach with good participation rates.
