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Award for Patient-Centricity

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by Cambridge Rare Disease Network with support from Havas Life Medicom

Summary of work

RAREfest is the first of its kind; an open to the public rare disease-inspired festival and campaign bringing passionate and inspirational people together to change the rare disease landscape for the better. This heart-warming, informative and action-inspiring campaign connected scientists, technology companies, charities, social enterprises, artists, performers, schools and the public.

The campaign successfully created a community united behind the goal of addressing the mismatch between public perception, knowledge and the reality of rare diseases. That community became the platform for rare disease expertise to be disseminated, connections to be established, and ideas readily exchanged and discussed.

The result was more than 20 new working collaborations with, and between, pharma, biotech, academia and patient groups meaning additional research, events, discovery projects and materials that add up to a significant change for the better.

Judges' comments

The RAREfest entry from Havas Life Medicom and Cambridge Rare Disease Network took an unusual approach, which the judges really liked. It had a benefit across a range of products and is a great initiative.


Community Mental Health Project - by Attigo CIC, with support from Johnson and Johnson, The Department for International Development and Yale University

Highly commended

NINLARO Patient Support Programme - by Takeda UK and Ireland with support from Apodi Limited


The APPEAL Study: Uncovering Psychosocial Burden in Peanut Allergy - by Aimmune Therapeutics with support from Solaris Health, Acaster Lloyd Consulting and Brainsell

RAREfest - by Cambridge Rare Disease Network with support from Havas Life Medicom

GLAD I Took Part - by King’s College London with support from Four Health

Key dates

Entry deadline 25 August 2023
Extended entry deadline 1 September 2023*
*additional fee applies
Judging Day 10 October 2023
Company/Team of the Year Interviews 3 November 2023
PMEA Event 22 November 2023