Please login to the form below

Not currently logged in
Email:
Password:

Digital intelligence blog

Pharma insight on digital marketing, social media, mobile apps, online video, websites and interactive healthcare tools

Novartis sponsors rare disease patient community

Backs site for patients affected by pancreatic neuroendocrine tumours (PNET)

Digital_Intelligence_blog_pharma_thumbNovartis has given its support to the first online community specifically for patients affected by a rare form of pancreatic cancer.

The Pancreatic Neuroendocrine Tumor (PNET) Support Community is a peer-to-peer support community for patients and carers from around the world to share information and support.

Created by New Jersey-based agency Inspire, the community's patient group partners include the Carcinoid Cancer Foundation and the Pancreatic Cancer Action Network.

Novartis, whose interest in the area centres around Afinitor (everolimus), will be the site's corporate sponsor.

Inspire's CEO Brian Loew said: "We have seen repeatedly how online patient networks can empower people affected by rare diseases.

"We're grateful for the support of our nonprofit partners, and to Novartis, all of whom understood that PNET patients needed this kind of resource in which they can exchange information with others facing the same serious health challenges."

Group members discuss such topics as practical tips for the newly diagnosed, chemotherapy and targeted therapies, and surgical options, Inspire said.

11th July 2013

From: Healthcare

Share

Tags

Subscribe to our email news alerts

Featured jobs

PMHub

Add my company
Innovative Trials

Innovative Trials is a leading global clinical trial patient recruitment company. With over 10 years’ experience, Innovative Trials deploys “boots-on-the-ground”...

Latest intelligence

Data security
Concerns about data security are building a strong case for clinical mobility in EMEA
Electronic medical records have transformed the storage of sensitive information but how can the healthcare sector continue to protect patient and staff data?...
Mainimage2
The role of digital health technology tools in supporting medical adherence
How DHT-based digital interventions can help to support patients and improve adherence...
How To Tell A Better Silent Story
They say a picture's worth 1,000 words, which is incredibly helpful when telling a silent story....