Please login to the form below

Not currently logged in
Email:
Password:

International Rare Disease Day

Today sees the fourth International Rare Disease Day, organised by the European Organisation for Rare Diseases

Today (February 28) sees the fourth International Rare Disease Day, an annual campaign organised by the European Organisation for Rare Diseases (EURORDIS) to raise awareness of life-threatening and debilitating diseases that affect a comparatively small percentage of the population.

This year's campaign focuses on health inequalities, with EURORDIS highlighting such issues as a lack of medical experts and knowledge about rare diseases, as well as a comparatively limited amount of care and research.

There are thought to be between 5,000 and 8,000 rare diseases worldwide, with more than 60 million people in Europe and the US affected alone.

Yann Le Cam, CEO, EURORDIS, explained some of the issues people with rare diseases face: “Many are fighting to obtain life-saving treatments or to be reimbursed by their health authorities. Others are denied access to specialised services and to disability compensation.”

Events for 2011 include a conference in Brussels organised with the European Commission to discuss health inequalities, with participants including Antonyia Parvanova, MEP, who is involved with the EU Directive on cross-border healthcare and patient mobility.

On February 28, EURORDIS is hosting a live stream of this European Symposium on rare diseases, with talks throughout the day until 4.45pm CET.

 EURORDIS' live stream of this European Symposium on rare diseases

28th February 2011

Share

Subscribe to our email news alerts

Featured jobs

PMHub

Add my company
The Good Ideas Group

Remarkable but responsible creative work. We're most passionate about the pursuit of original, powerful ideas that our clients can harness...

Latest intelligence

Is communication failing us?
Compelling people to care in a world oversaturated with news and information...
Are your field teams ready to excel in the new era?
A qualitative research approach to help you critically assess post-pandemic learnings and ignite the potential of meaningful interactions with HCPs....
5 Healthcare Marketing Blunders | How To Avoid Them.
Here are 5 healthcare marketing blunders and how best to avoid them....