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Sharing patient stories for World Pulmonary Hypertension Day

For World Pulmonary Hypertension Day and we’re here to help raise awareness of pulmonary hypertension (PH) - a frequently under and misdiagnosed condition. Created in collaboration with the PH patient community, we’re proud to launch a series of emotive videos that help give PH patients a voice and the chance to share their experiences.

What is Pulmonary Hypertension?

PH is an incurable condition in the blood vessels that supply your lungs, which causes high blood pressure and can affect anyone, young or old. It’s a life-threatening disease that affects more than 75 million people globally. But, with the right care and treatment, it can be managed.

Which is why raising awareness of PH is urgent. If left untreated, it can damage the heart. But if more people know about it and understand it, it can be diagnosed earlier and more accurately, in turn improving life expectancy.

Giving Pulmonary Hypertension patients a voice

Sharing patient-led stories is powerful, not only for raising awareness of PH, but also in supporting other sufferers and highlighting that they’re not alone. Patients understand their disease better than anyone, and we believe that it’s incredibly important that patient perspectives are always at the forefront of any research or medical intervention.

That’s why we hosted advisory boards with patients living with PH, to better understand their condition, their experiences and their needs. Gaining insights first hand allows us to create something that is an authentic representation of the condition and their experiences, and importantly, is reviewed and approved by those it seeks to help. The result was these three video stories, representing anger, fear and panic - the frequent emotions that PH patients feel as a result of their condition. The videos were co-created with the PH community and are based on experiences and testimony from those affected.

Watch the videos here.

11th May 2021

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COUCH Health

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