Please login to the form below

Mobile ethnography means no delays to the PoTS LIVE charity project

The team at Origins Insights are excited to introduce PoTS LIVE, our pro bono mobile ethnography project. Remarkably, the project marches on with its fieldwork phase even with the current UK restrictions. Collaboration has been central to the project set-up as we have been working in conjunction with PoTS UK and a trainee clinical psychologist from Royal Holloway, University of London.

The project aims to understand the impact of living with postural orthostatic tachycardia syndrome (PoTS), uncovering individual experiences by utilising mobile ethnography to remotely capture deep, emotive insights. PoTS is a chronic health condition that predominantly affects young women. It is a multisystem disorder that causes a wide range of symptoms which vary on a regular basis and can be triggered by a multitude of factors. As such, PoTS can be difficult to manage and affects many different areas of a person’s life such as their cognition, mobility and general wellbeing.

A few remarkable things to note from this project so far given the world we currently live in:

  • Ethical approval achieved in 2 weeks
  • Participant recruitment completed in 48hrs, with success achieved mainly as a result of social media awareness within the patient group
  • Guidance and stimulus materials developed in just 14 days, which outside of pharma regulation is a useful benchmark
  • All participants are utilising remote video capture enabling rapid fieldwork activation and completion
  • Interpretative Phenomenological Analysis (IPA) is being deployed as this technique specifically aims to investigate individual’s experiences and how they make sense of this themselves

Watch out for the programme read out in early summer, so that PoTS UK and PoTS patients themselves can understand and educate, thereby improving disease management.

If you’d like to support our colleagues at PoTS UK, feel free to donate to their cause, every penny counts! Details can be found via Instagram.

1st April 2020

Share

Tags

Company Details

Bedrock Healthcare Communications

01252 240200

Contact Website

Address:
One Fleet
Ancells Road
Fleet
Hampshire
GU51 2UN

Latest content on this profile

How can compelling healthcare communications support HCPs with their pandemic patient backlog?
Read our latest article, written by Chris Barton (Strategic Solutions Director), who shares his thoughts on how pharmaceutical companies and medical communication companies, like Bedrock, can support healthcare systems to work through the backlog of patients.
Bedrock Healthcare Communications
RESONANT GROUP APPOINTS STEPHEN MARCHANT CHIEF DEVELOPMENT OFFICER
Stephen Marchant has joined Resonant Group in the newly created role of Chief Development Officer.  He will be working with the Board to create, grow and acquire businesses and services to support changing client needs, as well as developing new approaches to the identification, support and recruitment of a diverse team of people to deliver real change in the healthcare communications sector.
Bedrock Healthcare Communications
5 top tips for adding creativity to medical writing
Learn from our Scientific Director, Stephanie Wasek, the secret to writing creative, compelling content for medical communications.
Bedrock Healthcare Communications
The future of dementia and the important role of healthcare communication in raising awareness
At Bedrock Healthcare Communication we are proud to help spread awareness of dementia with the ultimate goal to improve the lives of patients and carers
Bedrock Healthcare Communications
Bedrock’s strong start to 2021
Just two months into the year and at Bedrock we’ve already added FOUR new people to an ever-growing team!
Bedrock Healthcare Communications
Why we need to look at rare diseases in a different way
28 February 2021, Rare Disease Day aims to raise awareness of rare diseases and the impact they have on patients’ lives.
Bedrock Healthcare Communications