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Acute leukaemia patients get new online information centre that will help them get the best possible care
A unique collaboration between some of the world's leading leukaemia experts and the patient community in the UK and across Europe has resulted in the development of a one-of-a-kind educational resource centre that provides acute leukaemia patients with the support they need, when they need it most. It is the first time that such a comprehensive medical information video resource has been gathered together in this format and comes at a time when cancer patients and caregivers are advocating for a bigger say in decisions about their individual treatment regimens.
Some of the world's leading experts in the treatment of acute lymphoblastic leukaemia (ALL) and acute myeloid leukaemia (AML) have been brought together on a new video-rich website to advise patients on what to expect when diagnosed with acute leukaemia, how to make sure they get the best possible care from their healthcare providers, and how to make the right decisions about treatment. In addition, they provide practical tips on living well with cancer, and coping with life in remission and survivorship - something that the patient community needs in order to feel empowered, so that they can maintain as high a quality of life as possible.
Leukaemia is the 12th most common cancer in Europe, with 82,000 new cases diagnosed in 2012 (1). While death rates are slowly falling, patients with AML have a 5-year survival rate of 25% (2) and patients with ALL have a 5-year survival rate of 70% (3); access to new treatments and clinical trials often depends on where they live.
Now, the London-based team from a leading cancer patient channel Patient Power has developed a new and independent online video 'hub', where patients can be directed to the support networks of over 100 European acute leukaemia groups and charities, as well as expert advice and the very latest insights into what to expect on their journey with acute leukaemia. Most importantly, the panel of experts from the UK, Italy, France, Spain, Germany, Canada and the US provides insights into how to get the best from a healthcare team, including what questions patients and caregivers should be asking, what they should expect, and the steps they should take to ensure they are receiving the best possible treatment.
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Leukaemia is the 12th most common cancer in Europe, with 82,000 new cases diagnosed in 2012 (1). While death rates are slowly falling, patients with AML have a 5-year survival rate of 25% (2) and patients with ALL have a 5-year survival rate of 70% (3); access to new treatments and clinical trials often depends on where they live.
Now, the London-based team from a leading cancer patient channel Patient Power has developed a new and independent online video 'hub', where patients can be directed to the support networks of over 100 European acute leukaemia groups and charities, as well as expert advice and the very latest insights into what to expect on their journey with acute leukaemia. Most importantly, the panel of experts from the UK, Italy, France, Spain, Germany, Canada and the US provides insights into how to get the best from a healthcare team, including what questions patients and caregivers should be asking, what they should expect, and the steps they should take to ensure they are receiving the best possible treatment.
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