Please login to the form below
Acute leukaemia patients get new online information centre that will help them get the best possible care
A unique collaboration between some of the world's leading leukaemia experts and the patient community in the UK and across Europe has resulted in the development of a one-of-a-kind educational resource centre that provides acute leukaemia patients with the support they need, when they need it most. It is the first time that such a comprehensive medical information video resource has been gathered together in this format and comes at a time when cancer patients and caregivers are advocating for a bigger say in decisions about their individual treatment regimens.
Some of the world's leading experts in the treatment of acute lymphoblastic leukaemia (ALL) and acute myeloid leukaemia (AML) have been brought together on a new video-rich website to advise patients on what to expect when diagnosed with acute leukaemia, how to make sure they get the best possible care from their healthcare providers, and how to make the right decisions about treatment. In addition, they provide practical tips on living well with cancer, and coping with life in remission and survivorship - something that the patient community needs in order to feel empowered, so that they can maintain as high a quality of life as possible.
Leukaemia is the 12th most common cancer in Europe, with 82,000 new cases diagnosed in 2012 (1). While death rates are slowly falling, patients with AML have a 5-year survival rate of 25% (2) and patients with ALL have a 5-year survival rate of 70% (3); access to new treatments and clinical trials often depends on where they live.
Now, the London-based team from a leading cancer patient channel Patient Power has developed a new and independent online video 'hub', where patients can be directed to the support networks of over 100 European acute leukaemia groups and charities, as well as expert advice and the very latest insights into what to expect on their journey with acute leukaemia. Most importantly, the panel of experts from the UK, Italy, France, Spain, Germany, Canada and the US provides insights into how to get the best from a healthcare team, including what questions patients and caregivers should be asking, what they should expect, and the steps they should take to ensure they are receiving the best possible treatment.
The founder of Patient Power, Andrew Schorr, himself a two-time cancer survivor, says that the internet has given patients access to medical information and the ability to research their disease in great detail.
"Patients can be suspicious of educational programmes run by industry and often confused by communication to and from healthcare professionals," he said, "As a result there is an unmet need for patients to find reliable, trustworthy sources of information online. We have given patients a voice to ask questions directly to leading healthcare experts."
Charlie Grieve, Managing Partner of Patient Power Europe, highlights the importance of collaboration among European non-profit partners for the successful delivery of the project.
"Through collaboration between patient groups and leading cancer experts, we have created these engaging new online health centres, rich with information for European and international patients. I know this educational resource can provide patients and caregivers with knowledge, confidence and hope. We're already seeing many thousands of views and seeing a very positive interaction on the website and social channels in multiple languages. The next phase of the project will see increased content publishing, with a wider range of topics covered, and additional languages.
"The new initiative has received support from medical professions and charities alike. Professor Alan Burnett, from Cardiff University, who is one of 15 cancer experts that contributed to this new initiative, said, "With all the new things happening in diagnosis, prognostication, trials and the effects of treatment, it is very important that patients can be provided with information about their disease, its effects and what having certain treatments involves. Patients must be given confidence in the pathway ahead."
- http://www.cancerresearchuk.org/health-professional/cancer-statistics/statistics-by-cancer-type/leukaemia
- http://www.healthline.com/health-slideshow/acute-myeloid-leukemia-survival-rates-prognosis#5
- http://www.cancerresearchuk.org/about-cancer/type/all/treatment/statistics-and-outlook-for-acute-lymphoblastic-leukaemia
- Disease Education and awareness
- Educational Grants directly to Patient Power or in partnership with one of our not-for-profit partners
- Content funding
- Expert video interviews and roundtable discussions
- Patient video stories
- Conference coverage video interviews from major medical conferences
- Ask-the-Expert video
- Clinical Trial Awareness
Visit us on: www.patientpower.eu
Follow us on Twitter: @patientpowereu, @patientpower_es
Like us on Facebook: www.facebook.com/PatientPowerEU
Company Details
Brandcast Health
+44 (0)20 7291 5070
Address:
16-17 Little Portland Street
London
W1W 8BP
Latest content on this profile
- Ansar Jawair discusses precision medicines - what they are, where we are today and their future
- Ansar Jawair, Founder and CEO of Precision Medicines Ltd, tells us about his talk on precision medicines, what they are, where we are today, the future and some of the challenges involved in their implementation to patients. Precision medicines are matched to patients using biomarkers, enabling to target the specific drivers of various cancers. Major advances have already been made in this field, treating a range of cancers. Some of the major challenges include working with the complexities in different countries, trying to establish diagnostic testing, for enabling precision medicine. He mentions how we are moving towards an era of delivering personalised treatments that are matched to the individual patient. Furthermore, through advances in precision medicines and in diagnostic testing, we are seeing earlier detection of disease and identification of risk factors, allowing for preventative measures.
Brandcast Health
- Oradit Ido talks about the Unique Israeli Entrepreneurial Ecosystem
- Orado provides an overview of why she believes Israel is unique in its approach to innovation. With a history of overcoming challenges, a people who pride themselves on their chutzpe (audaciousness), and a fast paced culture, she explains why she thinks Israel provides a perfect ecosystem for innovation and entrepreneurship. She explains that within medicine and healthcare, there is a need for strategic support and engagement, and as an example of how the government is supporting this she provides an overview of the Ministry of Health challenge tender programme.
Brandcast Health
- Acute leukaemia patients get new online information centre that will help them get the best possible care
- A unique collaboration between some of the world's leading leukaemia experts and the patient community in the UK and across Europe has resulted in the development of a one-of-a-kind educational resource centre that provides acute leukaemia patients with the support they need, when they need it most.
It is the first time that such a comprehensive medical information video resource has been gathered together in this format and comes at a time when cancer patients and caregivers are advocating for a bigger say in decisions about their individual treatment regimens.
Brandcast Health
- Aubrey De Grey provides a summary of his goal of combating ageing
- Aubrey believes ageing is a serious issue, not only because people die of old age, but because it causes suffering. He discusses the fact that many diseases including chronic cancer, are the result of ageing and that by tackling ageing of cells, we can address many of the issues associated with poor health. To find out more about Aubrey and the SENS Research Foundation visit: http://www.sens.org/
Brandcast Health
- Oradit Ido talks about the Unique Israeli Entrepreneurial Ecosystem
- Orado provides an overview of why she believes Israel is unique in its approach to innovation. With a history of overcoming challenges, a people who pride themselves on their chutzpe (audaciousness), and a fast paced culture, she explains why she thinks Israel provides a perfect ecosystem for innovation and entrepreneurship. She explains that within medicine and healthcare, there is a need for strategic support and engagement, and as an example of how the government is supporting this she provides an overview of the Ministry of Health challenge tender programme.
Brandcast Health
- HaemOncCam #Haem2016
Brandcast Health
