Bedrock to raise awareness of Rare Disease Day 2022 with film 'Noah's Story'

Bedrock Healthcare Communications has produced a short film to raise awareness of rare diseases in recognition of Rare Disease Day 2022.

The film, ‘Noah’s Story’, highlights the fact that 1 in 20 people will be affected by a rare disease at some point in their life, and 75% of rare diseases affect children. Children like Noah – who had CLN2 Batten Disease. The film will premiere on Rare Disease Day, Monday February 28th. It’s 4 minutes of a true story you won’t want to miss.

Emily Wigginton, Bedrock’s Head of Client Services explained the inspiration behind the film… “In my curiosity to learn more about different rare diseases I found the website Noah’s Hope – Hope4Bridget and the story that the VanHoutan’s share about their family’s journey with CLN2 Batten Disease. It really moved me, and I felt compelled to use our voice on Rare Disease Day to help raise awareness, start conversations and help drive change. The VanHoutans and the families they put me in touch with are truly inspirational and I know how much it means to them that we shine a light on Batten Disease and help bring more awareness to the public about rare disease. I’m very grateful to them all for trusting us with their stories.”

Watch Noah’s Story at https://bedrock-health.com on Monday, 28^th February.