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Collectively, rare diseases comprise 6,000 conditions that affect
over 600 million people around the world. Rare Diseases Day aims to raise
awareness of the impact of rare diseases on patients and their families to both
health policy makers and the general public. Organised by Rare Diseases Europe
(EURODIS), and with the tagline Show
you’re rare, show you care, Rare Diseases Day has been held on the last day
in February since 2008, and will be marked this year by 301 events in 66
countries.
Rare Diseases Day is an encouraging time for patients with
rare diseases and for Vivid, according to Alison Cantle, Vivid’s newly appointed
MD. With interest and funding support from both Governmental Health Departments
and big pharma, intensive research efforts are beginning to show real promise.
Several major pharmaceutical companies now have a number of promising drug
candidates in their commercialisation pipelines, she added.
Vivid is the only healthcare agency set up as a dedicated rare
diseases medical communications practice, and offers the full spectrum of
medical communications services tailored specifically to the needs of the rare
diseases sector. Its bespoke services include a dedicated online consensus
platform to support the delivery of clinical recommendations on disease
management, specialist medical writing services from a team experienced in rare
diseases, clinical investigator and opinion leader events, and patient advocacy
development.
For further information please contact Alison@vividmedcomms.com
You can also find out more on the website
http://www.lucid-group.co.uk/vivid/