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Together Caring for Rare Disease
This is a trailer for campaign called, 'Together Caring for Rare Disease'. The full video will launch on 28th February for Rare Disease Day 2023, the campaign advocates for a pragmatic, “single discipline” approach to rare disease education. The news-style video features Dr Lucy McKay, CEO of Medics4RareDisease; Christy Rohani-Montez, PhD, Medscape Education Global Director of Clinical Strategy; Professor Sir Mark Caulfield, Vice Principal for Health, Queen Mary University of London; and patient advocate Dan Jefferies. Lucy McKay commented, “There is gap in medical education, when it comes to the basics of rare disease. By understanding what a rare disease is and how this rarity impacts patients and families, doctors can transform their patients’ experience.” Medscape is already trailblazing this single discipline approach with a dedicated learning centre, Pathways in Rare Disease, which provides clinicians the education they need to diagnose and care for the estimated 300 to 400 million people worldwide who live with a rare disease. The learning centre contains a variety of tools, resources, patient voices, case challenges, and educational activities that span multiple specialties, all housed in one place, with new content continuously being added. You can learn more about the campaign here. For more information on Medics4RareDiseases please visit www.m4rd.org You can learn more about the campaign here.
Medscape Education and Medics4RareDisease are partnering on a Rare Disease Day awareness campaign. The campaign will form part of a series of short programs produced by ITN in collaboration with Genetic Alliance UK.
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