Pharmafile Logo

Delivering change through better rare disease communications

February 28, 2020 |  

OPEN Health’s Richard Jones, Gemma Allen and Charlotte Richards discuss how pharma can utilise tools, channels and stakeholders to deliver change and enable better outcomes.

Many innovative therapies are being launched in rare disease following years of research that has been driven by the emergence of new technology and regulatory incentives. This brings high levels of hope and expectation to the rare disease community. Consequently, it’s vital that biotechnology and pharmaceutical companies cut through the noise to bring real understanding and informed decision making about the next generation of orphan drugs. Doing this requires communications that encompass the right mix of tools, methodologies, channels and people.

EXPLORING THE CHALLENGES IN RARE DISEASE THROUGH BETTER COMMUNICATION STRATEGIES

OPEN Health recognises that there are multiple challenges in commercialising new therapies in rare disease and is leading future practice in communications by placing emphasis on a ‘patient first’ approach. This includes supporting Benjamin James’s recent analysis on what the future could look like for outcomes driven communications in this space. Benjamin is a trustee and patient advocate for DMD Pathfinders and has recently completed a Masters in Scientific Communications. This provides us with a valued perspective on how improvements can be made for the benefit of patients. A summary of his findings can be found here.

To read the full article click here.

Pink divider

Get in touch

For more information on our commitment to better outcomes in rare disease please contact:

Gavin Jones, Director of Rare Disease, OPEN Health

Gavinjones@openhealthgroup.com

This content was provided by OPEN Health

Company Details

 Latest Content from  OPEN Health 

Spotlight interview: 15 minutes on Independent Medical Education

Celeste Kolanko, Managing Director of Liberum, OPEN Health takes 15 minutes to answer some key questions on independent medical education.

OPEN Health supports Genetic Alliance UK’s Rare Film Festival!

OPEN Health joined a number of rare disease patients, patient groups and industry representatives at the Regent Street cinema in London to see the winners announced at the Rare Film...

Empowering and equipping medical affairs teams to embrace an ever-expanding remit

Written by Jess Ingram and Francisca Costa, OPEN Health

The role of medical affairs in positive and appropriate engagement with patient advocacy groups

Written by Gavin Jones, Dr Alexandra Safronova & Professor Peter Rutherford, OPEN Health

OPEN Health expands offering with the launch of a new Learning & Development specialist team

Enhanced expertise to deliver impactful internal training programmes for healthcare clients

Spotlight interview: 15 minutes on healthcare communications in gene therapy

Gavin Jones, Director of Rare Disease, OPEN Health takes 15 minutes to answer some key questions on healthcare communications in gene therapy

OPEN Health becomes sponsor of MedComms Networking

New for 2020, OPEN Health is pleased to announce its sponsorship of MedComms Networking

OPEN Health Graduate Programme: from OPEN VIE to OPEN Health Medical Communications

Isobel Owens shares her experience of the OPEN Health Graduate Programme from OPEN VIE to OPEN Health Medical Communications