Pharmafile Logo

Delivering change through better rare disease communications

February 28, 2020 |  

OPEN Health’s Richard Jones, Gemma Allen and Charlotte Richards discuss how pharma can utilise tools, channels and stakeholders to deliver change and enable better outcomes.

Many innovative therapies are being launched in rare disease following years of research that has been driven by the emergence of new technology and regulatory incentives. This brings high levels of hope and expectation to the rare disease community. Consequently, it’s vital that biotechnology and pharmaceutical companies cut through the noise to bring real understanding and informed decision making about the next generation of orphan drugs. Doing this requires communications that encompass the right mix of tools, methodologies, channels and people.

EXPLORING THE CHALLENGES IN RARE DISEASE THROUGH BETTER COMMUNICATION STRATEGIES

OPEN Health recognises that there are multiple challenges in commercialising new therapies in rare disease and is leading future practice in communications by placing emphasis on a ‘patient first’ approach. This includes supporting Benjamin James’s recent analysis on what the future could look like for outcomes driven communications in this space. Benjamin is a trustee and patient advocate for DMD Pathfinders and has recently completed a Masters in Scientific Communications. This provides us with a valued perspective on how improvements can be made for the benefit of patients. A summary of his findings can be found here.

To read the full article click here.

Pink divider

Get in touch

For more information on our commitment to better outcomes in rare disease please contact:

Gavin Jones, Director of Rare Disease, OPEN Health

Gavinjones@openhealthgroup.com

This content was provided by OPEN Health

Company Details

 Latest Content from  OPEN Health 

Pharmerit rebrands to OPEN Health

OPEN Health is moving to one brand to create a world-class integrated services model

Rare Disease Day 2021

To mark Rare Disease Day 2021 on Sunday 28 February, OPEN Health will be intentionally quiet on all LinkedIn channels from 26 February to 1 March in order not to...

What’s in it for me? How to engage, motivate and support staff with internal training at OPEN Health

If the heart of the medical affairs industry is ultimately improving patient outcomes, internal training is the regenerative liver. Med affairs professionals need to regularly update their scientific knowledge and...

What NORD’s RareInsights® 30-year comparative analysis means to us and our clients at OPEN Health

How fantastic is it to see that the National Organisation for Rare Disorders (NORD) has followed up on a survey undertaken in the late 80’s to pressure test progress and identify...

OPEN Health Group Appoints New Leadership

OPEN Health Group today announced that Rob Barker has been appointed Chief Executive Officer. Rob succeeds outgoing CEO and Co-Founder, David Rowley, who is stepping down after 10 years. A...

OPEN VIE and Pharmerit Bring the Best of Both Worlds to Virtual ISPOR Europe 2020

Join OPEN VIE and Pharmerit – an OPEN Health Company at the ISPOR European Virtual Conference from 16-19 November 2020 to see how we are shaping the healthcare industry with...

OPEN Health brings the Best of Both Worlds to MAPS EMEA 2020

Strategy and execution, data and insight, experience and innovation…what do you look for in an agency partner?OPEN Health is a family of expert practices working in partnership to drive positive...

OPEN Health delivers over 250 virtual activities during COVID-19 – A clear path forward

The COVID-19 pandemic has permanently changed how medical education in the healthcare industry is conducted. Over the last few months, all conferences, medical education and field force deliverables have either...

How Far Do You Want To Go?

Join OPEN Health's virtual careers event on Tuesday 10th November, 15:00–17:00 GMT and discover where a career in medical communications could take you…