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Partnering with Patients and Caregivers in Clinical Research
One definition of patient-centricity is “Putting the patient first in an open and sustained engagement of the patient to respectfully and compassionately achieve the best experience and outcome for that person and their family” (Yeoman et al. 2017). That is, patients should be involved in all decisions related to their health, including in clinical trials. To achieve true patient-centricity, the authors highlighted the need to understand the patients’ needs and experiences, listen and respond to patients’ feedback with respect and humility, partner with patients to innovate and measure impact and outcomes that are important to them, and provide easy-to-understand and convenient information.
At the clinical trial level, directly engaging patients and caregivers in protocol development, study design, recruitment, manuscript or plain language summary writing, and data dissemination is key to conducting a truly patient-centric study. In theory, this approach is promising for improving clinical decision-making and, ultimately, patient outcomes. However, as Sheridan et al. (2017) reported, many researchers, patients, and other stakeholders lack clarity about when and how to engage as partners within the clinical research process.
In addition, Hemphill et al. (2020) reported that, while engaging patients and other stakeholders in research partnerships shows promise for strengthening clinical trial evidence, this requires substantial resources and effort. There are several potential challenges associated with building relationships and communicating with patient and caregiver partners, including ensuring that they feel heard and valued, as well as managing expectations about the project progress or their roles.
In this article, we dive into the role of digital technologies and virtual tools for partnering with patients and caregivers during all stages of the clinical trial journey.
Company Details
Impetus Digital
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Impetus Digital
WaterPark Place
20 Bay Street, 11th Floor
Toronto
Ontario
M5J 2N8
Canada
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- Top 10 benefits of virtual advisory boards: Save Time and Resources
- We've broken down the top ten benefits of why virtual advisory boards are superior to in-person and hybrid advisory boards.
#1. Countless Hours of Time-savings and Substantially Reduced Costs
We’ll start with two of the most obvious advantages of virtual advisory boards compared to in-person meetings: time and cost savings.
With shrinking budgets and smaller Pharma cross-functional teams, it is becoming increasingly important to strategically assess how to best allocate funds to specific customer target segments. Most customer universes have increased in size and complexity over the years, as physicians are no longer always the primary decision-makers when it comes to prescribing medications. Administrators, payers, nurses, pharmacists, other allied health professionals, and patient advocates are all playing substantial decision-making roles. Many of our clients are choosing to conduct parallel advisory boards with HCPs from different regions or with different groups of advisors (e.g., patients and doctors, general practitioners and specialists), which can quickly become very expensive and time-consuming if done in person.
By moving your advisory board activities online, for the cost of one in-person meeting, you can reach three times as many customers or engage the same group of advisors four times!
To learn more about this and other great benefits of virtual advisory boards, check out our blog https://www.impetusdigital.com/2021/09/17/top-10-benefits-of-virtual-advisory-boards/
Interested in learning how we can help you engage your advisors, HCPs, patients, and stakeholders with expertly executed virtual meetings and programs? Visit us at www.impetusdigital.com or talk to one of our amazing team members via https://meetwithimpetus.com/
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Impetus Digital
- 10 Important Advisor Questions: Placement of Your Product in the Current/Future Treatment Algorithm
- As part of our top 10 most important advisor questions that every brand team should keep in mind when designing virtual advisory board touchpoints, here's another one to keep in mind:
5. Placement of Your Product in the Current and Future Treatment Algorithm
What are the current and potential places of your product in the treatment algorithm for specific patient populations? What factors (e.g. demographic, clinical, and regulatory/reimbursement factors, new data, or loss of exclusivity) may affect this?
Learn the other questions by reading our blog:
https://www.impetusdigital.com/2020/02/03/top-10-most-important-advisor-questions/
For more information on how we can help you engage your advisors, HCPs, patients, and stakeholders, visit us at www.impetusdigital.com or talk to one of our amazing team members via https://meetwithimpetus.com/
Follow us on social media
https://linkedin.com/company/impetus-digital
https://twitter.com/impetus_digital
https://facebook.com/ImpetusDigital.fb
https://impetusdigital.com/podcast/
Impetus Digital
- Top 10 Most Important Advisor Questions: Strengths and Weaknesses of Your Product
- As part of our top 10 most important advisor questions that every brand team should keep in mind when designing virtual advisory board touchpoints, here's another one to keep in mind:4. Strengths and Weaknesses of Your ProductWhich practical considerations or product monograph specifics pose limitations to your brand and which can you positively leverage to differentiate your product from its competitors? How can you overcome the potential limitations in the short- and long-term? Learn the other questions by reading our blog:https://www.impetusdigital.com/2020/02/03/top-10-most-important-advisor-questions/For more information on how we can help you engage your advisors, HCPs, patients, and stakeholders, visit us at www.impetusdigital.com or talk to one of our amazing team members via https://meetwithimpetus.com/Follow us on social mediahttps://linkedin.com/company/impetus-digitalhttps://twitter.com/impetus_digitalhttps://facebook.com/ImpetusDigital.fbhttps://impetusdigital.com/podcast/
Impetus Digital
- Top 10 Most Important Advisor Questions: Messaging and Branding
- As part of our top 10 most important advisor questions that every brand team should keep in mind when designing virtual advisory board touchpoints, here's another one to keep in mind:
3. Messaging and Branding
How are your value proposition, differentiation, messaging, and branding affecting your brand’s growth? What are you doing right and what should you do differently?
Learn the other questions by reading our blog:
https://www.impetusdigital.com/2020/02/03/top-10-most-important-advisor-questions/
For more information on how we can help you engage your advisors, HCPs, patients, and stakeholders, visit us at www.impetusdigital.com or talk to one of our amazing team members via https://meetwithimpetus.com/
Follow us on social media
https://linkedin.com/company/impetus-digital
https://twitter.com/impetus_digital
https://facebook.com/ImpetusDigital.fb
https://impetusdigital.com/podcast/
Impetus Digital
- Top 10 Most Important Advisor Questions: Key Brand Attributes
- As part of our top 10 most important advisor questions that every brand team should keep in mind when designing virtual advisory board touchpoints, here's the first one to keep in mind:
2. Key Attributes of Your Brand
What attributes of your product or brand are the most concerning to HCPs, payers, and patients? How can you mitigate those concerns? Which attributes do HCPs, payers, and patients appreciate the most? How can you leverage these key attributes?
Learn the other questions by reading our blog:
https://www.impetusdigital.com/2020/02/03/top-10-most-important-advisor-questions/
For more information on how we can help you engage your advisors, HCPs, patients, and stakeholders, visit us at www.impetusdigital.com or talk to one of our amazing team members via https://meetwithimpetus.com/
Follow us on social media
https://linkedin.com/company/impetus-digital
https://twitter.com/impetus_digital
https://facebook.com/ImpetusDigital.fb
https://impetusdigital.com/podcast/
Impetus Digital
- Top 10 Most Important Advisor Questions: Unmet Needs
- As part of our top 10 most important advisor questions that every brand team should keep in mind when designing virtual advisory board touchpoints, here's the first one to keep in mind:1. Advisor Questions on Unmet NeedsFor example – what are the most important unmet needs of your advisors or their patients? What innovative resources, tools, or data would help to overcome these? What role, if any, can your company play in helping your advisors?Learn the other questions by reading our blog:https://www.impetusdigital.com/2020/02/03/top-10-most-important-advisor-questions/For more information on how we can help you engage your advisors, HCPs, patients, and stakeholders, visit us at www.impetusdigital.com or talk to one of our amazing team members via https://meetwithimpetus.com/
Impetus Digital
