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Genetic Alliance UK

This page shows the latest Genetic Alliance UK news and features for those working in and with pharma, biotech and healthcare.

Raising awareness and encouraging support on Rare Disease Day 2020

Raising awareness and encouraging support on Rare Disease Day 2020

The national campaign, run by Genetic Alliance UK, invited its supporters, including patient organisations, industry partners, communication agencies and individual supporters, to submit short films around the theme of rare disease. ... The festival was

Latest news

  • ‘Inflexible’ NICE blocking access to rare disease drugs ‘Inflexible’ NICE blocking access to rare disease drugs

    The report has won the endorsement of Genetic Alliance UK, an umbrella organisation which represents many of the UK’s rare disease charities. ... We at Genetic Alliance UK, our 220 patient organisation members, and our community look forward to

  • emotive partners with Rare Disease UK for public awareness campaign emotive partners with Rare Disease UK for public awareness campaign

    According to Rare Disease UK, which is run by charity group Genetic Alliance UK, more than 7% of the UK population is affected by a rare disease at some point in ... Partnering with emotive, Rare Disease UK hopes that the agency can bring creativity to

  • Charity of the Year for Ellie's Friends at 2016 Communiqué Awards Charity of the Year for Ellie's Friends at 2016 Communiqué Awards

    Foundation. The Foundation saw off competition from The Brain Tumour Charity, Genetic Alliance UK, Pancreatic Cancer Action and Beating Bowel Cancer to pick up the prize.

  • Finalists revealed for Communiqué Awards 2016 Finalists revealed for Communiqué Awards 2016

    Joining them are charities that include Beating Bowel Cancer and the Genetic Alliance, and pharma companies such as AbbVie, AstraZeneca, Celgene, Medtronic, Novartis and Roche, to name but a few. ... GCI Health. Genetic Alliance UK. Incisive Health.

  • Rediscovering the x factor

    A case study looking at the creation of a revitalised brand for UK patient group Genetic Alliance UK. ... Results. The organisation officially changed its name to Genetic Alliance UK on June, 2010.

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Latest Intelligence

  • 25 Women Leaders in UK Healthcare 25 Women Leaders in UK Healthcare

    Jayne has led Genetic Alliance UK for two years, a UK charity and umbrella group comprised of 200 third-sector organisations that variously provide support, information and funding for research. ... Genetic Alliance UK is home to Rare Diseases UK that

  • Rare diseases: meeting the challenge Rare diseases: meeting the challenge

    Between 5, 000 and 8, 000 distinct rare diseases exist - 80% of them have genetic origins - and affect 6-8% of the population. ... routinely commissioned,” says Alastair Kent, director of Genetic Alliance UK.

  • Rediscovering the X factor

    On 1 June 2010, the organisation officially changed its name from the Genetic Interest Group to the overwhelming first choice of Genetic Alliance UK. ... The organisation officially changed its name to Genetic Alliance UK on 1 June 2010.

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Approximately 1 fully matching, plus 2 partially matching documents found.

Latest from PMHub

  • OPEN Health supports Genetic Alliance UK’s Rare Film Festival!

    OPEN Health joined a number of rare disease patients, patient groups and industry representatives at the Regent Street cinema in London to see the winners announced at the Rare Film Festival – an awards ceremony that celebrates and showcases films

  • OPEN Health OPEN Health

    OPEN Health has today announced the acquisition of North West UK-based medical communications agency Spirit. ... OPEN Health supports Genetic Alliance UK’s Rare Film Festival!.

  • Lucid tackles Tough Mudder 2017

    Prior to the event, they raised over £1800 for the charities Genetic Alliance UK and Bloodwise, in addition to supporting Tough Mudder’s official charity partner, Help for Heroes. ... Marlow. Bucks. SL7 1EY. UK.

  • emotive. ‘4817’ annual conference

    The first guest speaker of 4817 was Farhana Ali, from campaign group Genetic Alliance/Rare Disease UK. ... These were judged at the end of the second day, with the winning idea being worked up in preparation for a full presentation to the Rare Disease UK

  • A Spotlight on Healthcare Communications Advocacy by Alastair Kent

    Until recently I was Director of Genetic Alliance UK, the umbrella body for all those affected by rare and genetic disorders. ... Genetic Alliance UK is a national charity of over 180 patient organisations, supporting all those affected by genetic

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Approximately 1 fully matching, plus 7 partially matching documents found.

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