Please login to the form below
patient advocacy
This page shows the latest patient advocacy news and features for those working in and with pharma, biotech and healthcare.
Clinigen launches educational programme for rare disease patients and organisations
Carole Scrafton, director of Flutters &Strutters Patient Advocacy Organisation, said: "Education and training across multiple stakeholders, including patient advocacy groups, healthcare organisations, and healthcare professionals, is key to ensuring
Latest news
-
LifeArc launches rare disease programme with £100m investment
We will actively seek partnerships with other charities, academic institutions, industry, and patient advocacy groups, forming a network of dedicated individuals and organisations pursuing the same mission – to transform the lives
-
Takeda’s all-oral multiple myeloma triplet therapy recommended by NICE
Shelagh McKinlay, head of patient advocacy at Myeloma UK, said: “We have been working with NICE and other stakeholders for several years to ensure access to this therapy is maintained and ... continues to be available to patients and the clinical and
-
European MPs call for urgent action against antimicrobial resistance
The involvement of civic society and patient advocacy groups is also crucial in the development and implementation of AMR National Plans.”.
-
New healthcare comms agency, POP Health, launches in London
The services on offer span across all areas of healthcare communications; from disease awareness, patient advocacy, product/corporate, internal communications, and issues management.
-
FDA and NIHR launch public-private partnership for rare neurodegenerative diseases
patient communities, advocacy organisations and private entities. ... Areas of focus will include patient-focused drug development, and the utilisation of the FDA-funded Rare Disease Cures Accelerator-Data and Analytics Platform External Link Disclaimer
More from news
Approximately 3 fully matching, plus 114 partially matching documents found.
Latest Intelligence
-
Amplifying the patient voice
For example, while planning a recent disease awareness campaign for sickle cell, a patient advisory board meeting, along with discussions with the leading patient advocacy group, revealed important insights around the ... Peer-to-peer dialogue can
-
LifeArc to launch rare disease centres across the UK
We will actively seek partnerships with other charities, academic institutions, industry and patient advocacy groups, forming a network of dedicated individuals and organisations pursuing the same mission – to transform the lives ... In all our
-
The five ‘innovation areas’ driving success in chronic diseases
Innovative routes of administration can also pave the way to reaching wider patient populations. ... for clinical trials or working with medical societies and patient advocacy groups to increase awareness.
-
Improvement in rare disease diagnosis and care
The prevailing shift toward patient-centred care coordination endeavours to tackle these obstacles head-on. ... This unfulfilled need continues to take precedence within the agenda of numerous rare disease patient advocacy groups.
-
The importance of accelerating clinical trial diversity
So is beginning an open-ended conversation with community or patient advocacy groups. ... There’s still a lot of groundwork to be put in with patient advocacy groups to achieve meaningful and sustainable change.”.
More from intelligence
Approximately 0 fully matching, plus 66 partially matching documents found.
Latest appointments
-
GCI Health announces two new senior leadership hires
Couglhan has supported large global pharma clients with integrated omnichannel campaigns, patient advocacy programmes and disease awareness, and has held roles at Shire Health London, Galliard Healthcare Communications, Fleishman Hillard and
-
New hire and promotions announced at Evoke KYNE
At Evoke KYNE, she has led a variety of communications initiatives across therapeutic areas, including patient advocacy relations, launches and product approvals.
-
Christie Anbar appointed global healthcare lead at Ruder Finn
In her new role, Anbar will lead the company’s partnership with clients ranging from major biopharmaceutical companies to emerging biotech, tech and health data pioneers, as well as patient advocacy ... In those roles, she led award-winning work for a
-
New faces at Lucid Group and ZPB Associates
of our end goal, which is improving patient outcomes,” said Goodwin. ... She also helped the client to navigate complex patient advocacy relations and stakeholder engagement for the launch of the new gene therapy.
-
Ipsen hires general manager, Laura Hamill joins Gilead and Orchard expands leadership team
During her new role, Payne will be responsible for leading the global corporate communications and external affairs function, spanning internal and external communications, investor relations, patient advocacy and government relations. ... Katie is a
More from appointments
Approximately 0 fully matching, plus 17 partially matching documents found.
Latest from PMHub
-
90TEN strengthens senior management team with five new additions in 2020
90TEN has also announced the promotion of Stephanie O’Hagan to Senior Associate Director in the communications division, to support continued growth of the consultancy’s patient advocacy offering.
-
Ten ways to start (or continue) your patient engagement journey
However, it’s only recently that most companies are actually starting to prioritize patient engagement. ... Patient advisory boards and other insight-gathering programs are quickly gaining popularity, and for good reason.
-
Expanding Opportunities for Healthcare with "Digital Twins"
Brad Womble, Senior Director of Strategy, Marketing and Mergers &Acquisitions, at Jabil Healthcare dives into several thought-provoking topics, including how insights from “digital twins” can be used to improve #patient
-
The Path to Patient Centricity
2) Patient Advocacy. The pharma industry can work closely with patient advocacy groups to understand the challenges and concerns of patients. ... By partnering with patient advocacy groups, the pharma industry can build trust with patients and
-
Pharmaceutical Marketing Strategies For The Digital Age
Other important trends include an omni-channel approach, patient advocacy and data analysis. ... Other important trends include an omni-channel approach, patient advocacy, and data analysis.
More from PMHub
Approximately 16 fully matching, plus 72 partially matching documents found.
Subscribe to our email news alerts
- Sanofi and AI specialist Aqemia enter $140m drug discovery partnership
- Novartis’ Fabhalta approved by FDA as first oral monotherapy for rare blood disease PNH
- Merck gains rights to Abbisko’s pimicotinib in deal worth over $70m
- Almirall, BSC and Nostrum Biodiscovery partner for dermatological diseases
- LifeArc launches £5m motor neurone disease drug repurposing programme
- Clinical Trials Investigator and Patient Engagement Planning: A Customer Story
No results were found
PMHub
AMICULUM
AMICULUM is an independent family of 11 branded agencies that deliver communications and consultancy services to pharmaceutical, biotechnology and health...
Latest intelligence
- Clinical Trials Investigator and Patient Engagement Planning: A Customer Story
- ...
- New Playbook Alert: Virtual Patient Engagement
- ...
- Millennials: the wellness generation
- Looking at the results from a global healthcare research study focusing on the patients of the future...
