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patient advocates
This page shows the latest patient advocates news and features for those working in and with pharma, biotech and healthcare.
FDA narrows label for Biogen’s Aduhelm to only include mild forms of Alzheimer’s disease
Reflects the patient population included in clinical trials of anti-amyloid treatment. ... Based on our ongoing conversations with prescribing physicians, FDA and patient advocates, we submitted this label update with the goal to further clarify the
Latest news
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ICER to review the role of health insurers in determining patient access to prescription drugs
Non-profit research institute will evaluate how health insurance policies may harm patient access to treatment. ... yesterday. The first annual assessment into how health insurance policies may harm patient access to treatment will seek input from
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Galderma unites rosacea sufferers from around the globe in an empowering social media awareness movement: #RosaceaUnmasked
RosaceaUnmasked. Led by top online rosacea patient advocates, the campaign brings the rosacea community together during these challenging times to share experiences of essential mask-wearing by posting mask-on and ... It will help to address patient
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Q&A: Kate Callan
What has been your career highlight to date? A big highlight for me was a patient education programme called Joint Decisions. ... It was a combination of a great team and clients, and getting to collaborate closely with really amazing patient advocates
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How technology is driving new trends in patient engagement
Patient advocates around the world are working with the life sciences industry in a collaborative fashion, and that is only going to bring about more innovation. ... Alicia Staley is Senior Director of Patient Engagement at Medidata. 7th October 2019.
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Verily unveils next-gen trials alliance with Novartis, Pfizer
Now the company is teaming up with Novartis, Otsuka, Pfizer and Sanofi to transform clinical trials - which the industry, regulators, leading research and patient advocates all agree rely on outdated, cumbersome ... The partners say they aim to develop
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Latest Intelligence
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ASH 2022: bad blood but big advances
The session drew on patient perspectives from the Leukemia Patient Advocates Foundation to advocate multicentre real-world data capture in haematologic malignancies in Europe. ... The DE&I challenge extends beyond the workforce and into patient
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How AI is finally helping rare diseases gain more than just attention
Little is known about some, and finding patient pools to run research studies presents challenges for others, meaning pharmaceutical companies have not traditionally been incentivised to focus on them. ... Patient support groups and advocates have made
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Patient diversity in clinical trials needs to be centre stage
industry, patient groups and advocates, regulators, charities and health agencies. ... lack of diversity in clinical trials by building evidence and amplifying patient voices.
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Encouraging patient participation in real-world studies
plc, we explore the intersection between real-word studies and patient participation in drug development. ... Truly understanding patient needs and priorities means engaging directly with patients, families and patient advocates to develop high-value,
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How pharma can unlock the potential of influencer marketing
Building a successful campaign around influencer marketing. By Beth Whitworth. In this digital age, where the patient is increasingly at the centre of our campaigns, influencer marketing feels like a natural ... The advocates have proven to be critical
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Latest from PMHub
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End-to-end patient strategy: Making a treatment for patients, with patients
But what do we mean by patient engagement? The effective and active collaboration of patients, patient advocates, patient representatives and/or carers in the processes and decisions within the medicines development ... But what about end-to-end patient
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A new prescription for the U.S. healthcare market?
well as patient advocates in the U.S.
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From Vision to Action: Medical Affairs’ Time to Lead is Now – Key Themes and Takeaways From the 2022 Medical Affairs Professional Society (MAPS) Global Annual Meeting
Patient Engagement (4). Artificial Intelligence (3). COVID-19 &Post-Pandemic Communications (6). Key Themes and Takeaways. ... It is critical to be a long-term partner to patient advocates and not just “drop in” when their insights are needed, and
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Opening up about patient engagement
Read the third blog of the series looking at key barriers to effective patient engagement in pharma. ... Opening up about patient engagement. Two patient advocates who spoke at the conference both described pharma as “secretive”.
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Committing time to making meaningful connections - top 5 tips
Although pleased to be involved, the two patient advocates who spoke at the conference, Olivia Fulton and Rebecca Langley, both felt opportunities to engage with pharma needed to be more accessible ... You can also catch up on our earlier post: ‘
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- Novo Nordisk suspended from ABPI over ‘serious’ code of practice breaches
- Team ITG appoints Gerhard Arnhofer as head of customer strategy for life sciences division
- Results for Astellas’ non-hormonal menopause drug published in The Lancet
- 2023 PM Society Awards – winners announced
- Pfizer pays Royalty Pharma $475m following US approval of migraine nasal spray
- Biogen and Eisai’s Alzheimer’s drug to be covered by US Veterans Health Administration
- Quantum Computing, Artificial Intelligence, & Machine Learning for Drug Discovery
- Novo Nordisk and Dewpoint partner on insulin resistance drug candidates
- AbbVie’s Parkinson’s disease therapy application rejected by FDA
- The increasing value of rare disease trials
- Wrapping up EAU with a Look at Medscape’s Urology Impact
- MHRA to introduce new UK clinical trials framework
- Team ITG appoints Gerhard Arnhofer as head of customer strategy for life sciences division
- Locus Biosciences announces first patient treated in urinary tract infection trial
- Biogen and Eisai’s Alzheimer’s drug to be covered by US Veterans Health Administration
- Dermavant reports positive phase 3 results for Vtama cream in atopic dermatitis
- Pfizer/BioNTech’s Omicron-adapted booster approved by FDA for young children
- Havas Health & You appoints Alex Okada as chief creative officer of Havas Lynx Group
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Latest intelligence
- Rare diseases: not so rare after all
- The brave new world addressing rare diseases – a way ahead to better and more inclusive treatment...
- Webinar: Evolving Patient Journeys - How to generate deeper insights in a changing healthcare landscape
- Register now for part one in a series, Evolving Patient Journeys, in which our experts look at the main ways in which the patient journey has evolved in recent years....
- DIGITAL EXPERIENCES: LEARNINGS FROM OUTSIDE PHARMA
- It’s long been the case that pharma lags behind other industries when it comes to digital adoption and engagement. So, what can we learn from these other industries, and how...
