Please login to the form below

Not currently logged in
Email:
Password:

Patient Voice

This page shows the latest Patient Voice news and features for those working in and with pharma, biotech and healthcare.

UK introduces Rare Diseases Framework to improve the lives of people with rare diseases

UK introduces Rare Diseases Framework to improve the lives of people with rare diseases

Improved coordination of care for people with rare diseases throughout the patient journey. ... The patient voice will be ‘central’ to the implementation of this framework, said the DHSC.

Latest news

  • Q&A: Steve Clark Q&A: Steve Clark

    Steve Clark is a Director at Redwood Brand Curators and volunteers as a Patient Voice with Bowel Cancer UK and an Expert Patient with the Association of Coloproctologists of Great Britain

  • Healthcare’s voice revolution Healthcare’s voice revolution

    At the very least, the level and quality of voice support and subsequent benefits to the patient may help encourage prescribers to keep patients on a specific medication. ... That way, they will be best-positioned to create an optimal piece of voice

  • How technology is driving new trends in patient engagement How technology is driving new trends in patient engagement

    Today, patients are getting involved in the development life cycle. We’re seeing the patient voice in software development in a very iterative fashion, which adds very actionable input in areas ... Alicia Staley is Senior Director of Patient

  • Envision appoints new patient partnerships leader

    years of experience and skills working with pharma, clinicians and patient advocacy groups”. ... amplify the patient voice and ensure patients have access to the very best in scientific research and understanding.”.

  • ‘Inflexible’ NICE blocking access to rare disease drugs ‘Inflexible’ NICE blocking access to rare disease drugs

    MAP BioPharma CEO, Christian Hill says this is one of the biggest obstacles to patient access:. ... We at Genetic Alliance UK, our 220 patient organisation members, and our community look forward to ensuring patient voice plays a crucial role in making

More from news
Approximately 0 fully matching, plus 48 partially matching documents found.

Latest Intelligence

  • Mapping the patient journey: eight ways to improve support programmes Mapping the patient journey: eight ways to improve support programmes

    The most effective way of ensuring a solution captures the voice of the patient is to set up a Patient Steering Group or advisory board at the earliest stage of programme ... The patient voice is vital, but with co-design, it’s often forgotten in the

  • Keep your audiences close Keep your audiences close

    Bureaucratic hurdles have made planning patient advisory boards and even meetings with patient advocacy groups more onerous than ever. ... Bringing the audience’s mindset into everything we do. While it would be truly amazing to be able to bring a

  • Rise of the patient influencer Rise of the patient influencer

    These influencers are communicating with other patients in their own, fresh voice – unmediated by patient groups or the third sector. ... The power of the patient influencer. Patient influencers offer genuine content in an authentic voice.

  • Integrating patient reported outcomes into clinical trials Integrating patient reported outcomes into clinical trials

    How capturing the patient voice is unlocking medicines’ commercial potential. Patient-reported outcomes (PRO) are now critical to commercial success in many indications. . ... the people who have it, and what they value most in terms of alleviation

  • For trials without tribulations, we must improve patient experience For trials without tribulations, we must improve patient experience

    The result of this consultation is Havas Lynx Group’s latest white paper‘Patient Centricity on Trial’. ... Tailored experiences. We’ve heard individual patient stories of why one particular trial experience was better than another, and we’ve

More from intelligence
Approximately 0 fully matching, plus 22 partially matching documents found.

Latest appointments

  • Dr Sotirios Stergiopoulos leaves Shire for Ipsen Dr Sotirios Stergiopoulos leaves Shire for Ipsen

    We are delighted to appoint him to an expanded role through which he will make the voice of the patient heard at the highest levels of the organisation and represent the

  • Sanofi appoints ‘chief patient officer’ Sanofi appoints ‘chief patient officer’

    In this role Dr Beal's responsibilities included ensuring that the voice of the patient was heard in the research portfolio of PCORI – a research institute focused on patient-centred outcomes ... the patient perspective advances our approach to meeting

More from appointments
Approximately 0 fully matching, plus 2 partially matching documents found.

Latest from PMHub

  • How a design mindset can lead to better medical outcomes

    Imaginatively designed content combined with patient insights can deliver campaigns that inspire behaviour change. ... These include:. being the primary medical voice of the patient on all internal strategy discussions.

  • Webcast

    Amplifying the patient voice: How to conduct patient research sensitively to uncover emotional insights.

  • 5 strategies that will improve your clinical trial recruitment 5 strategies that will improve your clinical trial recruitment

    A previous blog discusses in detail  how to hear and use the patient voice to develop a clinical trial that works for them, and in turn, work for you. ... Find out if they have relationships with patient advocates that they can utilise.

  • Audio-social: Are new platforms the answer to hearing patient voices? Audio-social: Are new platforms the answer to hearing patient voices?

    During the pandemic, the pharmaceutical industry has moved to using a variety of digital channels to replicate meeting with patient groups or communities as best as possible. ... However, reaching the digitally disengaged and giving them a voice in the

  • Customer Faithful Limited

    We specialise in patient experience research. We help pharma companies identify what matters most to patients, reporting back what people want, how they feel and how they define success outcomes.

More from PMHub
Approximately 10 fully matching, plus 33 partially matching documents found.

COVID-19 Updates and Daily News

Featured jobs

PMHub

Add my company
Onyx Health Ltd

Onyx Health is a healthcare communications and PR agency based in the North East of England, but with a national...

Latest intelligence

How can we strike the right balance between familiarity and innovation when it comes to data presentation?
Following our webinar in March, Getting MedComms right: navigating the age of the amateur expert, we’re taking the time to respond to questions we were unable to answer during the...
Deep 6 AI: the smart software breathing new life into clinical trials
Fishawack Health interviews Wout Brusselaers, the Deep 6 AI CEO using artificial intelligence to solve one of the greatest barriers stagnating healthcare innovation—clinical trial recruitment and retention....
COVID-proof: How Teams are Creating Launch Intensity thru Adversity
Now that the game has changed, how are marketers shifting their launch behaviour? We've identified 5 common observations from effective teams....