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Rare Disease Day 2020
This page shows the latest Rare Disease Day 2020 news and features for those working in and with pharma, biotech and healthcare.
UK introduces Rare Diseases Framework to improve the lives of people with rare diseases
bluebird bio releases a video to raise awareness – Rare Disease Day 2021 is on 28 February. ... Rare Disease Day was first celebrated in 2008 on 29 February, as it is a ‘rare’ date that happens only every four years.
Latest news
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No patient left behind
How healthcare comms helps create rare disease communities. Natalie Lanyon. We’re told from a young age that individuality is to be celebrated; it’s good to stand out from the ... The patient’s perspective. With rare diseases, the patient often
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Raising awareness and encouraging support on Rare Disease Day 2020
Rare Disease Day aims to raise awareness about the impact of rare diseases among the general public and decision-makers alike. ... The winner of the People’s Choice Award will be announced on Saturday 29 February to coincide with Rare Disease Day.
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- Novo Nordisk suspended from ABPI over ‘serious’ code of practice breaches
- Roche and Eli Lilly to collaborate on Alzheimer’s disease blood test
- MHRA to introduce new UK clinical trials framework
- Pfizer pays Royalty Pharma $475m following US approval of migraine nasal spray
- Team ITG appoints Gerhard Arnhofer as head of customer strategy for life sciences division
- 2023 PM Society Awards – winners announced
- AstraZeneca/MSD’s Lynparza combination approved in UK for prostate cancer
- WHO report highlights impact of COVID-19 pandemic on non-communicable diseases
- Critical success factors and the increasing value of rare disease clinical trials
- Quantum Computing, Artificial Intelligence, & Machine Learning for Drug Discovery
- Novo Nordisk and Dewpoint partner on insulin resistance drug candidates
- AbbVie’s Parkinson’s disease therapy application rejected by FDA
- Team ITG appoints Gerhard Arnhofer as head of customer strategy for life sciences division
- Locus Biosciences announces first patient treated in urinary tract infection trial
- GSK reports positive phase 3 results for five-in-one meningococcal vaccine candidate
- Kite reports positive three-year results for CAR T-cell therapy in rare blood cancer
- Results for Astellas’ non-hormonal menopause drug published in The Lancet
- Ketchum appoints Conor Nash as global chief financial officer and chief operating officer
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Genetic Digital
Genetic Digital specialises in developing digital marketing solutions for the healthcare, medical and pharmaceutical sectors. From developing a digital strategy,...
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