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rare diseases

This page shows the latest rare diseases news and features for those working in and with pharma, biotech and healthcare.

EFPIA-EURORDIS joint statement published on patient access to medicines for rare diseases

EFPIA-EURORDIS joint statement published on patient access to medicines for rare diseases

The statement contains a series of proposals to improve the lives of people living with rare diseases by addressing access barriers to transformative medicines. ... The EFPIA-EURORDIS joint statement on patient access to medicines for rare diseases

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