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#RareDiseaseDay

This page shows the latest #RareDiseaseDay news and features for those working in and with pharma, biotech and healthcare.

bluebird bio releases a video to raise awareness – Rare Disease Day 2021 is on 28 February

Raising awareness and encouraging support on Rare Disease Day 2020

For more information on Rare Disease Day, visit rarediseaseday.org.

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Rare Disease Day – looking to the future with hope

On this year’s Rare Disease Day, Amanda Henkel, VP, Strategy, Nucleus X Consulting (part of Nucleus Global), reflects on recent advances in the rare disease setting. From the mother who spends hours at a clinical study site while her 3-year-old
Rare Disease Day – why it’s important to show your stripes

Nucleus Global's EU Strategy Director, Amanda Henkel, writes about the importance of continuing to raise awareness of rare diseases. Rare Disease Day () on 28 February is intended to raise awareness among policymakers and the public about rare
Rare Disease Day 2019: A patient perspective on primary sclerosing cholangitis

To find out more information about Rare Disease Day, visit www.rarediseaseday.org. ... Available at: https://rarediseaseday.org/article/what-is-rare-disease-day. Accessed February 2019. Rare Disease Day. What is a rare disease?
Rare Disease Day 2019

Today is #RareDiseaseDay and is an opportunity to highlight some truly unbelievable/frightening statistics around rare diseases.
Rare Disease Day 2018: Five things you should know about rare diseases.

Available at: . Accessed February 2018. 8.RareDiseaseDay.org. What is a rare disease? Available at: . Accessed February 2018. 9. Orphanet Report Series. Prevalence and incidence of rare diseases: Bibliographic data; November